Home Cook Heroes

Something very special happened in the Gift of Life Howie’s House kitchen this summer.

Bryson and his family with Mason’s parents in the Gift of Life Howie’s House kitchen

Two families not only came together to cook a warm, home-cooked meal for our guests, but to also celebrate the life of toddler Mason Hess, an organ donor who saved four lives.

Mason Hess and his parents, Kellie and Adam

The two families were Mason’s own, and the family of the little boy who received Mason’s lungs, Bryson Palmer.

Bryson Palmer, the recipient of Mason’s lungs, celebrates Mason’s life

Kellie and Adam Hess regularly volunteer at the Gift of Life Howie’s House as Home Cook Heroes as a way to keep Mason’s memory alive. When Bryson Palmer and his family flew from their home in Ohio to visit the Hess’ in New Jersey, everyone thought it would be a great idea to cook a meal together at the House. The only volunteer date available during their visit was Mason’s birthday.

“It was such a moving experience to cook with the family of one of Mason’s recipients and see how far both families have come,” Kellie says. “We are so happy that this wonderful little boy is healthy. We felt such a bond with him.”

Kellie Hess, Mason’s mother, hugs Bryson, the recipient of her son’s lungs

When Bryson was five months old, he was diagnosed with neuroblastoma cancer and received 18 months of treatment, including chemotherapy, stem cell transplant, radiation, and immuno-therapy. Unfortunately, he suffered a rare side effect—progressive scarring of the lungs—and required a double lung transplant. Bryson and his family traveled over 500 miles from Ohio to St. Louis, Missouri where he waited for 12 weeks in the PICU before he received his precious gift of life from Mason.

Bryson and his family traveled from Ohio to New Jersey to meet and say thank you to Mason’s family

It’s been six years since Bryson received his transplant and he has remained cancer free. He’s also the healthiest he’s ever been.

“It feels like Mason’s family and my family were meant to be in each other’s lives,” Katie, Bryson’s mother, says. “We at least hoped we’d be able to say thank you to the family who donated their loved one’s organs. We never expected to have such a close relationship, but now we’re all family.”

Bryson and Mason’s sister, Faith, pose with a photo of Mason

The Palmers’ stay as Home Cook Heroes was the first time they’d ever been to a Gift of Life Howie’s House-like facility. “During Bryson’s transplant journey, we traveled over 500 miles from home,” Katie says. “We were told we had to stay there but had nowhere to go. I slept in the hospital with Bryson and kept necessities in my car in the parking garage. My husband traveled back and forth from Ohio so he could continue working. We eventually did get an apartment, but there was no pantry, no meal offered every night, and we were completely on our own. It’s amazing that the House is a place to call home for so many people.” While cooking at the House, Bryson and his family were able to meet two other double lung recipients.

“It’s so nice to see this community,” Katie adds. “It would’ve been nice to have other families to talk to.”

The Hess and Palmer families in the Gift of Life Howie’s House Legacy Garden

We are so proud and humbled that our kitchen was a warm meeting place for such a meaningful moment between a donor and recipient family. These families are a true testament to how organ donation changes lives—and it was all possible because Adam and Kellie said yes to donation.

Through the generosity and support of our contributors, Gift of Life Howie’s House is able to provide a “home away from home” for transplant patients and their families.

Click here to donate today!

The annual Gift of Life Volunteer Recognition Ceremony, a day where we recognize the compassion, dedication, and hard work our volunteers bring to the Gift of Life community, took place on June 9th.

Home Cook Heroes group New Vision Pioneers outside in the Howie’s House Legacy Garden.

The Howie’s House had the opportunity to present four awards—the Home Cook Heroes Award, the Heartman Award, the Fundraising Ambassador Award, and the Guest Services Award. We are so incredibly proud and humbled by all of our volunteers and couldn’t have been happier to honor them in this special way.

We presented our Home Cook Heroes Award to New Vision Pioneers, who, led by Jody, have been volunteering with us since the spring of 2015. Since then, they have come in 36 times to date and have served nearly 2,000 meals to families who came a long way to receive treatment in Philadelphia.

The Heartman Award was given to Janice Schwartz Donahue. Janice has been volunteering with Gift of Life for over 20 years, first getting involved with her daughter, Jessica, who was a heart transplant recipient. Sadly, Jessica passed away, but Janice continues to carry on her legacy by coordinating Jessie’s Day with her other daughter, Laura, every year to give the gift of education to organ transplant recipients who are looking to attend college.

Volunteer Janice Schwartz Donahue with volunteer Karen Barnett-Roberts.

Janice is also a weekly volunteer at the Howie’s House. Every Wednesday, you’ll find her in the kitchen warmly welcoming and supporting the Home Cook Heroes volunteer groups, giving tours, setting up and cleaning up, or doing whatever is needed to make sure the kitchen operations are running smoothly.
She has become part of the Howie’s House “family” and we just love having her with us each week. To date, Janice has contributed over 900 hours of her time to supporting the Howie’s House!

This year, the 2018 Fundraising Ambassador Award, which recognizes a volunteer, group, or organization that has demonstrated exceptional leadership in coordinating, motivating, and successfully completing fundraising efforts for Gift of Life Howie’s House, was given to the Penkala Family.

In an effort to honor his son Paulie and raise awareness about organ and tissue donation, Paul Penkala, along with family and friends, hosts an annual golf tournament and graciously donates all of the money raised to Gift of Life Howie’s House.

Howie’s House Development Manager, Sara Cohen, poses with the Penkala family.

In 2011, the family pledged $25,000 to underwrite the Howie’s House resident laundry room in their son’s name, because, as Paul put it, “Paulie was always particular about ironing his clothing.”

Even though they fulfilled this pledge a few years ago, the Penkalas continue to host their outing to support our Adopt-A-Family Program.

The Penkalas also volunteer in the House as Home Cook Heroes, preparing and serving home-cooked meals to our guests, and in the community by participating in speaking engagements, sharing their donation story, and spreading awareness for organ and tissue donation.

The Penkala family has accomplished so much and we are so grateful for all you’ve done for the Howie’s House, our transplant families, and the transplant community.

Lastly, our Guest Service Award was given to Ginneh Earle. Ginneh began volunteering at the Howie’s House in 2014 and has generously contributed over 400 hours of her time since joining our team.

Ginneh Earle, left, and Howie’s House Resident Manager, Diana, right.

Anyone who has been at the Howie’s House on a night where Ginneh is helping knows that they are instantly in good hands, as she makes sure that our Home Cook Heroes groups have everything they need, and always doing so with a welcoming smile. She often will stay at the Howie’s House until after 9pm, making sure several times that there is really nothing else she can do to help!

In addition to being a friendly presence at the Howie’s House on a weekly basis, Ginneh also has volunteered at the Dash and President’s Reception.

Ginneh does not have a direct connection to transplantation, but says that she just wants to help, and we can’t thank her enough for that. Her leadership, kindness, and commitment to support and comfort transplant patients, families, caregivers, and fellow volunteers is truly admirable.

Our volunteers play such an important role at the Howie’s House and we are so grateful for their help—thank you so much!

The ladies of Rutgers Gang have kept their college friendships especially strong. They began volunteering as Home Cook Heroes when the Howie’s House opened in 2011, and have continued their commitment to serving transplant families in honor of a member whose relative passed after while waiting for a multi-organ transplant and another whose daughter received two kidney transplants.

At least once a month, these women come together not only to catch up, but to prepare and serve a warm meal for our guests. “Some people don’t realize the stress on caretakers is very hard,” Barbara, one of the members, says. “It’s good to sit down, relax, and enjoy something other than a boxed meal.”

For one of their first meals, they prepared a big lasagna dinner. However, when they found out most other Home Cook Heroes groups were serving Italian-style meals, they started to change things up. Since then, they’ve served breakfast for dinner, Mexican meals, and have even barbequed outside.

“We’ve got our routine down to a science,” Barbara says.

After they finish cooking, the ladies will often go out to dinner themselves, bringing their husbands and boyfriends along with them.

“It’s fun to get together with my friends,” Barbara says. “It’s also fun to do something for others. We all love cooking and it’s something we can all do. The Howie’s House is so life-changing. It feels like home.”

We’re so grateful these women have found a home here at the Howie’s House and that by volunteering with us, they’re honoring important people in their lives.

We’ll see you next time, Rutgers Gang!

“My experience at Gift of Life Howie’s House is inexpressible.

I spent 42 nights there while my husband was in the hospital. The Gift of Life Howie’s House is a home. When visiting my husband daily at the hospital, I would find myself telling him what time I would be going “home” that day.

When I did arrive home, I was always greeted by the smiling faces of the dedicated staff and the aromas of a home cooked meal. The rides to and from the House were another gift. The volunteers, many of them transplant recipients, were a source of support because they knew exactly what I was experiencing. Of course, there was also a tremendous connection that developed among the guests.

Although everyone had a different story, and we were all on different steps of the journey, it was such a comfort to share my day with people who were walking the same walk as I was.”

–Judy, past family House Guest

For several years now, my family and friends have come together at Gift of Life Howie’s House to cook and serve guests a special, home-cooked meal …

We choose to be Home Cook Heroes because we know what these families are going through. And we do it because we want to honor our own hero, our son Gavin, on his birthday.

Gavin had a febrile seizure that led to cardiac arrest in April of 2013. He was 5 1/2 years old. His kidneys were the only viable organs able to be donated — and both of them went to a man in his 40s.

Helping others is, to me, one of the best ways to honor Gavin. – Kate Leong

It meant so much to us to donate Gavin’s kidneys at the end of his life, and we feel joy over and over as we help families staying at the Howie’s House. They come from all over the world, and the Howie’s House serves as their “home away from home” — and so much more.

 

-Kate Leong

 

 

 

“The Howie’s House is a very special place for everyone. Not just the guests, but the volunteers too.”


Most donor families, while they may correspond with their loved one’s recipients, don’t often get the opportunity to meet the recipients in person. When a donor family member does have the opportunity to meet a transplant recipient, even if the gift did not come from their own loved one, these interactions can be very meaningful and of much comfort to them. This is the feeling members of Hearts of Gold get when they come to the Howie’s House. Hearts of Gold is a donor family support volunteer group run through Gift of Life Donor Program, and its members meet regularly at Gift of Life Howie’s House to participate in the Home Cook Heroes program, where they can interact with transplant recipients and families.

Diane Milbourne, Hearts of Gold team leader, explains, “Being at the Howie’s House gives us an opportunity to talk to transplant recipients and those who are waiting for a life-saving transplant. It is probably the first time that potential transplant recipients and their families come into direct contact with donor families. It is important for both of these groups to interact, to hear each other’s stories. We are happy to share the story of our loved one and reassure people that the gifts they are receiving are done so because our loved ones wanted to give the greatest gift of all, the gift of life.”

Having served their first meal just a few months after the Howie’s House opened in July 2011, Hearts of Gold has since returned three times every year to prepare dinner or brunch for transplant families. “We remember when we first started cooking, their weren’t too many guests in the House, now there is always a full House. The Howie’s House is truly a blessing for each family who is coming to Philadelphia for their medical needs.”

Hearts of GoldHearts of Gold aims to serve meals that bring comfort to the guests staying at the House. Because all of the members of this team have had loved ones in the hospital, they relate to the stress and anxiety that caregivers can feel on a daily basis. The team explains, “At that most stressful time of our lives, we were not interested in eating, but knew it was necessary. We know it is the same for the guests staying at the Howie’s House after a long day at the hospital. Comfort foods are just one small way for our group to help them.”

From chicken pot pies to casseroles and soup, the group always tries to make a different comfort food. However, nothing can top the popularity of their trademark meal, “Breakfast for Dinner.” Serving the guests eggs, bacon, sausage and home fries, Hearts of Gold ties it all together by making their special heart-shaped pancakes!

The group volunteers at the Howie’s House to remember, honor and celebrate their loved ones. The members find healing through the Home Cook Heroes program and other opportunities with Gift of Life Donor Program. “The Gift of Life organization has been there for each donor family at our worst possible time. Physical activities, like cooking together as a group, releases the endorphins in our brains, which makes us look at life in a more positive way,” explains one of the Hearts of Gold members.

Interested in getting experiencing the benefits of the Home Cook Heroes program for yourself? Gather your friends, family or coworkers together and participate in this heart-warming program which provides an essential means of healthy support for transplant families staying at the Howie’s House. Dinners are served every night of the week, along with brunch on the weekends. These meals afford our tired guests with the opportunity to decompress, share their experiences and find solace in a communal setting. Volunteers donate their time and the food, and get to see the impact of their efforts on the families they serve, all the while learning the importance of supporting organ donation in their own lives. Come try it out! Click here to learn more about the Home Cook Heroes Program.

“The Home Cook Heroes program gives us the opportunity to connect directly with the people we help serve – in real time.  Every time we’ve been there, the guests – and staff – have been so grateful for what we do.” – Greg Dommel, Voya Financial

As the clock approaches 6 o’clock, inviting aromas of roasted pork tenderloin, breaded tilapia and berry cobbler beckon guests into the dining room. Even after three main courses, lots of sides and plenty of desserts, there are rarely any leftovers from this particular group’s Home Cook Hero meal!

Since its inception, the Voya Financial team has been nothing but committed. Greg Dommel, their team leader, created the Home Cook Heroes program through his company. Like many employers, Voya Financial strongly encourages staff to get involved in the community, offering incentives to encourage them to take advantage of volunteer opportunities, including 40 hours of paid time each year to volunteer.

The Voya Community Partners initiative presents several opportunities to get involved throughout the year. All opportunities are selected by employee nominations in an effort to interact with organizations and causes important to its employees. Because Gift of Life Howie’s House was near and dear to Greg’s heart, he has been ensuring his company’s involvement in our programs since 2011, when the Howie’s House first opened.

Greg has a close personal connection transplantation, as one of his own family members needed a heart transplant in the early 2000s. He mentioned commuting back and forth from Lancaster to the Philadelphia area for transplant care was a strain on his family. He understands the important need of the Howie’s House and is thankful that families traveling g to Philadelphia for transplant care nowadays have a warm and inviting place to stay.

When the opportunity arose, there was no question in Greg’s mind about where he wanted to direct his time in volunteering. He quickly formed the Voya Financials Home Cook Hero team and was excited to hit the kitchen.

The team’s natural talent to “rebrand” has not gone unnoticed by Howie’s House guests and staff! Greg recalls one day the team was scheduled to volunteer at the Howie’s House, “Mark and I finished off our grocery shopping with a diverse range of desserts including a Mixed Berry Pie with Lattice Top.  During the car ride from West Chester to the Howie’s House, contents shifted. When we unpacked our groceries, the pie was still sealed and fresh – but was no longer anything close to being pie-shaped.”  Being fast on his feet and thinking with marketing savvy, Mark took the object formerly known as a pie and placed it in a slow cooker.  “Just like that, our pie was rebranded as ‘Mixed Berry Cobbler.’ Interestingly, our ‘cobbler’ was one of the most popular items that night!”

Volunteering at the Howie’s House means a lot to the entire Voya Financials team, even beyond having a personal connection to transplant. “It gives us the opportunity to connect directly with the people we help serve – in real time.  Every time we’ve been there, the guests – and staff – have been so grateful for what we do.”

For other corporate companies looking to start a team, figuring out where to start can be a challenge.  Greg sheds some light on the issue: “I quickly learned to surround myself with people who enjoy cooking. Initially, most of our Home Cook Heroes team came from my Marketing group, but soon expanded to other departments.  We have a revolving door of frequent volunteer cooks, but our lead chef, Mark Siciliano, helps coordinate the planning and execution of our meals.”

 

The Home Cook Heroes program offers a unique and engaging opportunity to get involved in both the local and the transplant community. It provides a chance to engage directly with the people you are helping. Working with your coworkers, family, friends or classmates, groups of up to 10 people can prepare meals (on or off site) and serve them to our guests. Just bring yourself and your food and we will provide everything else in our modern, fully-equipped kitchen. For more information about the Home Cook Heroes program or to sign up, please click here.

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