Gift of Life

Joanne, a liver recipient, leaves her mark on Joey’s racecar

On Thursday, October 3rd, NASCAR driver Joey Gase visited Gift of Life Howie’s House, inviting us to take part in his outreach to educate millions of NASCAR fans worldwide about the life-saving importance of organ and tissue donation.

As part of his Hand Prints of Hope event, 50 members of the transplant community covered the hood of Joey’s racecar with hand prints and special messages which he raced that weekend during the NASCAR Xfinity Series at Dover International Speedway in Dover, DE. NASCAR fans were drawn to the colorful hand prints, messages, and the Gift of Life Donor Program logo in the center.

“It turns a ton of heads at the race track. When people see the hand prints all over the car, they want to come up and ask us about it and we get to tell them,” Gase, 26, said during his speech at the event.

When Joey was 18 years old, his mother, Mary, passed away of a sudden brain aneurism and was an organ donor. She was able to save and transform the lives of 66 people.

A sweet message left with donor mom Mary’s hand print in memory of her son Eric, an organ donor

“Ever since that day, I wanted to do whatever I could to help raise awareness for organ donation and honor all those affected by it,” he said. “It’s not easy for the recipients, those on the waitlist, or the donor families. There are over 110,000 people on the waitlist nationwide and I want to do whatever I can to get that down to zero.”

We thank Joey and his team at Joey Gase Racing for their advocacy and support, and our friends at Medline for sponsoring this event!

Asher, safe and sound in his room at the Gift of Life Howie’s House

When you meet Asher, the first thing you notice is his big smile and the cute laugh that leaves it. “He likes to smile at the girls,” his mom Kendra says. “He’s such a little flirt already.”

What you may notice next are the wires attached to his stroller and the beeping of a machine that sits at the bottom of it, or the mask that wraps around his face to help him breathe.

Asher lived the first months of his life in the hospital

“Asher hasn’t followed the normal path of anything,” Kendra says.

Just six weeks after he was born, Asher was placed on the transplant list to wait for a new heart. After a prenatal ultrasound, he was diagnosed with dilated cardiomyopathy when his doctor noticed something unusual about his heart.

While Asher waited for his second chance at life, he went into end stage heart failure and his kidneys and liver began to shut down. His doctors emergently placed him on a Berlin heart to keep him alive until a new heart became available. Surprisingly, on what was only supposed to keep his heart beating until he could receive a transplant, Asher thrived.

“He began doing normal baby things,” Kendra says. “He jumped from 10 to 15 pounds and became so much more expressive. He would smile and laugh while he watched people in the hospital.”

The day finally came when Asher and Kendra received news that he would receive his new heart. Asher received his precious gift of life because of a brave family’s decision–a decision that saved his life.

Kendra taking care of Asher in the hospital

Unfortunately, Asher suffered some complications from his surgery. Within 10 days of his transplant, he underwent another major surgery.

“Asher was intubated in the hospital for the first month after his transplant,” Kendra says. “He was full of fluid and non-expressive…just not himself. It was so hard to go through that and think that I may have to say goodbye to my child.”

Thankfully, Asher made it through his second surgery. When he was finally able to leave the hospital’s care, the Howie’s House became Asher’s first home.

“I love that the Gift of Life Howie’s House is so clean and that it’s safe for immunosuppressed patients like Asher,” Kendra says. “Dinner is always made every night, which is wonderful. The last thing I want to do is cook when I get back from the hospital. It’s also so family-oriented. It was so easy for me to be a mom spending time with my children.”

Asher and his siblings

While Kendra takes care of Asher, her family, including her father and other two children, come down to spend time with them on the weekends.

“One day we sat down in the Activity Center and watched movies all day,” she says. “We also eat dinner together in the garden and go on walks. We even went to a festival at one of the parks nearby.”

At the Gift of Life Howie’s House, Kendra is also able to take care of herself. She takes bubble baths in her private bathroom, uses the gym, reads in the library, sits outside, and participates in the evening activities with her daughter.

Asher doing well post-transplant

She also spends time talking to other families about their transplant care. She even learned that some of them are on the same medication as Asher. “Learning from [the other transplant families] gives me hope,” she says. “I’m less stressed because there are so many people to talk to. I didn’t realize how nice that’d be.”

Asher has recovered so well that he and his family were recently able to go back to their own home, but plan to return to the Howie’s House for their follow-up appointments.

“I know Asher may need more care in the future,” Kendra says. “And I’m just thankful that the Howie’s House exists.”

When Donna Jones was diagnosed with three different, simultaneous lung infections, the mother of four found herself in need of her children’s care and a “home away from home.”

“I’ve always been a very active mom and grandmother,” Donna says. “But as I got sicker and sicker, I was really grateful to have them be there for me.”

As Donna’s condition worsened, her daughter Nicole and her siblings decided together it would be best for their mom to have someone stay with and care for her. Nicole offered to move in with her mom and help take care of her, her pets, and her house.

Donna suffered a collapsed lung in 2012 and was able to recover well. Although she was moving more slowly than she was used to, she was able to attend three of her children’s weddings and continue working from home as an IT consultant.

Nicole and Donna in the Gift of Life Howie’s House dining room

Tragedy struck again on New Year’s Eve in 2015 when Donna suffered another collapsed lung. This time, her doctors suggested she consider a lung transplant. She was listed in 2017. Donna would remain on oxygen and require around the clock care until an organ became available for her.

Thankfully, Nicole was able to be by her mom’s side.

Donna received “the call” that a donor organ had become available in December of 2018 and together, she and Nicole quickly left their home in Maryland to get to Philadelphia. As soon as they arrived at the hospital, Donna was immediately taken to surgery to receive her precious gift of life. Nicole reassured her siblings: “I got mom,” she said.

Two of Donna’s other three children were able to arrive in Philadelphia following the procedure.

After her transplant, Donna spent 21 days in the ICU and 18 days in inpatient therapy. Afterwards, she and Nicole came to stay at Gift of Life Howie’s House so she could remain close to her doctors.

“I would recommend this place to anyone—it’s a comforting and loving environment,” Nicole says. “You get to talk to people at all points in the transplant journey.”

Although Nicole was the only one of Donna’s children to stay with her at the Gift of Life Howie’s House, the others felt so comforted knowing that their mother had a safe place to stay.

“I sent them photos and took them on a video tour,” Nicole says. “Instantly, they all felt at ease knowing mom and I were okay.”

“You make a family here,” Donna adds. “We all exchange phone numbers. You learn from others. You encourage them. You can really feel the love.”

Although all of Donna’s children could not be at her side as Nicole was, they all supported their mother in different ways. While she was in the ICU after her transplant, they visited and brought her grandchildren down to keep her company.

To help her grandson understand what happened to his grandmother, one of Donna’s daughters wrote the children’s book “My Nonna’s Boo Boo” to teach him about her lung transplant.

Donna and her four children

Donna’s transplant journey brought her and her children closer together. “This was a very emotional journey,” Nicole says. “I don’t regret anything, especially if it means that I can have my mom around. I just want her to get back to the person she misses being.”

“I am so grateful to have Nicole in my life,” Donna says. “She does everything for me. I am so blessed.”

Here at the House, mothers and daughters like Donna and Nicole can stay together and take care of each other while they navigate the difficult transplant journey. Other family members can also find comfort in knowing their loved one has a safe place to stay during a stressful time. Donna was able to recover after receiving her precious gift of life from an incredibly selfless donor and Nicole was not only able to take care of her, but find the comfort and support she needed as her mom’s caregiver, too.

This Mother’s Day, you can honor a special mother, sister, or woman in your life by making a gift to support the Gift of Life Howie’s House, a “home away from home” to many mothers and daughters like Donna and Nicole. Consider honoring someone all year along by making a monthly gift. Our Welcome Home Club for monthly giving helps make sure patients and their families have a safe, supportive space to return to at the end of each day—all year round.

Make Your Gift Here!

To receive her life-saving liver transplant, Karen Wolbach was airlifted from her home in Burlington, Vermont to a treatment center here in Philadelphia. Her husband and caregiver, Richard, had just four hours to alert friends and family, pack a bag, find a place to stay, and make arrangements for someone to look after their home before the air ambulance arrived.

“There was no time for decisions,” Richard said. “We just got on the plane with the nurse, medical assistant, and the pilots. Everything seemed to move in slow motion.”

Richard and Karen with their son, Ryan, enjoying their time together outdoors

Karen had been getting sicker and sicker. She was growing extremely fatigued, nauseous, lost her appetite, and was beginning to jaundice. She no longer had the energy to take walks outside with her family, meet up with her friends for lunch, watch her son perform as a clarinetist, and had to resign from her job as a radiologic technologist because she was too weak to work.

Her need for a transplant had not just turned her life upside down, but had suddenly relocated her and her husband over 350 miles away to a city neither had ever been to before.

While Karen was in the hospital, Richard needed to find a place to stay. He initially booked a week-long hotel stay so he could be close to Karen while she was in the hospital, but with expensive city hotel prices, he knew he could not afford those accommodations for long.

Thankfully, someone on Karen’s transplant team told him about the Gift of Life Howie’s House. He gave us a call and there was a room available for him.

“A lot of people don’t realize that being a caregiver comes with a tremendous amount of stress,” he says. “It can be so overwhelming, but the Gift of Life Howie’s House took the worry out of my day so I could focus on caring for my wife.”

At the House, Richard had access to all of the supportive services we offer, including a private guest room, a warm, home-cooked meal each evening, free shuttle service to and from the hospital Karen was receiving treatment in, counseling from our licensed social worker, and support from a network of other families who understood what he was going through—all for just $40 per night.

The support Karen and Richard gave each other by being close together is invaluable to the transplant journey

Karen received her second chance at life thanks to an incredibly selfless donor shortly after she and Richard were airlifted to Philadelphia. She was able to join Richard at the Gift of Life Howie’s House for two weeks before they were given the OK to go back home.

While Karen was here, she too was able to rest. Each night, dinner was waiting for her as she came down to the kitchen. She hopped on the shuttle’s morning run when she had to see her doctors at the hospital. She was also able to talk with our social worker and other transplant families about what she was feeling.

“I wasn’t just healing physically, but I was healing emotionally,” she explains. “It was very therapeutic to sit down and share stories. It reminded me that I am not alone. If we had to stay in a hotel, we would never have gotten this kind of support.”

Karen and Sister May, a family friend, in the Gift of Life Howie’s House dining room

“The House has helped me heal, too,” Richard says. “We felt a little apprehensive coming back to Philadelphia for Karen’s follow-up appointments after all that’s happened, but once we came back to the Gift of Life Howie’s House, it was like we were home again.”

Now that Karen’s health has improved, she wants to get back to work and volunteer in her community, and spend time with her family.

Karen and Richard were away from their home for four months while Karen received her life-saving transplant and recovered here at the Gift of Life Howie’s House. At the beginning of their journey to Philadelphia, they had no idea how long they’d be away from home or how they’d afford to stay together and support each other during this difficult, scary time.

Karen and Richard received the support they needed on their transplant journey here at the House

Without the House, Richard and Karen may have had to find an apartment, take cabs or public transportation to and from the hospital each day, find meals and a place to wash their clothes, and may not have met any other families on the transplant journey who could offer them friendship and support. Richard may not have even been able to stay by Karen’s side while she was in the hospital.

At the Gift of Life Howie’s House, they both received the support they needed.

When you make a gift to the House, you’ll help provide this support to countless other transplant families who are anxious, frustrated, and in need of support.

Will you make a gift to help families like Karen and Richard’s during one of the most difficult times in their lives?

Mattman posing for a picture with Heartman during his stay at the Howie’s House back in 2014

Many of you may remember Matthew Brown, also known as “Mattman,” who stayed at the Howie’s House with his mother, Kelly, back in 2014. He received his precious gift of life—a life-saving heart transplant—at just five years old. Now Matthew is a bright, happy nine year old boy in the fourth grade, and we are so happy to let you know that he is doing very well!

Before Matthew Brown was five years old, he’d had four heart surgeries. He was born with a defect that was weakening his heart. The day after Christmas in 2013, he was medevacked from his local hospital to the Children’s Hospital of Philadelphia and listed for a transplant.

“I really had no idea how long we’d be away from home,” Kelly explains. Thankfully, Matthew received his transplant on June 25th, 2014 and was able to stay at Gift of Life Howie’s House with her as he recovered.

Kelly and Matthew stayed in Philadelphia for 8 months—from the day Matthew was flown to the Children’s Hospital of Philadelphia to the day his doctors told them it was OK to go home.

Matthew and Kelly visiting Gift of Life Howie’s House’s Holiday Campaign poster

During his stay, Matthew was also featured in our 2014 holiday campaign, using his brave transplant journey to help support other families like his.

Matthew and his family in the hospital as they waited for his gift of life

Four years later, Matthew and Kelly still return to the House every three months for his follow-up appointments.

Matthew says he loves coming back to the Howie’s House because it’s “nice and comfortable and the food is tasty!” Last time he and Kelly were here, they enjoyed a delicious “Philly-style” dinner—cheesesteaks and corn dogs—prepared by our volunteers.

He also loves running into Ms. Diana at the Front Desk. They always have a staring contest and a thumb war. He’s a lot bigger now than he was when he first stayed here, but Ms. Diana can still beat him from time to time.

Matthew is a happy, healthy 4th grader now. His favorite subjects are math and history, and he still hasn’t decided what he wants to be when he grows up. He loves playing video games on the tablet and on his computer, and spending time with his family.

Matthew and his family hiking along a waterfall (something he could not do before his transplant)

Matthew and his family are just one example of the hundreds that come to the Howie’s House each year navigating the difficult transplant journey.

“The Howie’s House really supported us throughout our journey,” Kelly says. “It was nice to meet families going through similar challenges. It really made me feel so much better.”

Matthew poses in front of the Rocky Steps at the Philadelphia Museum of Art five months post-transplant

It was because of our generous community that Matthew and his mom were able to stay together and had a safe place to return as they adjusted to Matthew’s second chance at life.

Each year, families like Matthew and Kelly’s come to the Howie’s House for support as they navigate the difficult transplant journey, and it is because of people like you that we are able to be their “home away from home.”

We are so proud to have helped a brave boy like Matthew and a strong mother like Kelly, and we look forward to serving other transplant families coming to Philadelphia with you by our sides.

Thank you!

 

What a beautiful day we had for our 14th Annual Kidney Open Golf Outing on Monday! We really sank a “hole-in-one” for our transplant families and made the outing a huge success!

Thanks to the participation and generosity of our community, we raised more than $108,000 to support our Adopt-A-Family Program, which will help us continue carrying out our mission to care for transplant families in need, even to those who cannot afford our nightly fee.

Thank you so much!

Remembering the words of Steve and Audrey, our guest speakers and past Howie’s House guests: “The Howie’s House provides you with what you need to get through transplant…and they give you a family. You feel like you belong.”

It is your support that helps us remind those undergoing the transplant journey they are not alone. While Steve was recovering from his lung transplant, Audrey was able to stay by his side here at the Howie’s House. Whether you joined us for a day of golf, sponsored part of our outing, or volunteered to support our staff, you helped make more experiences like Steve’s and Audrey’s possible.

If you were unable to attend this year’s outing, we hope to see you next year at the 15th Annual Kidney Open Golf Outing!

We’d also like to thank all of our sponsors for supporting this event! Thanks to your help, our transplant families will be well taken care of!

Golf Cart Sponsor
Main Line Health

Dinner Sponsor
Bridge to Life

Gift and Putting Contest Sponsor
NORA – Nationwide Organ Recovery Transport Alliance

Double Eagle Sponsors
AmeriHealth Caritas
CSL Behring
Glenmede
Highmark Blue Cross Blue Shield Delaware
Quick Courier Service
VRL Eurofins

Apparel Sponsor
Community Tissue Services

Eagle Sponsors
Beneficial Bank
Elite Landscaping
Independence Blue Cross
Lions Eye Bank of the Delaware Valley
Mohan USA
Organ Recovery Systems
The Palopoli Family Trust
TD Bank
Venture Jets

Beverage Cart Sponsor
Lincoln Financial Group

Lunch Sponsor
LifeNet Health

Registration Sponsor
QuickSTAT

Course Refreshment Station Sponsors
Sightlife
Sovereign Insurance Group

Coffee Station Sponsor
Gillespie Electric, Inc.

Practice Range Sponsor
CTI Clinical Trials
Einstein Healthcare Network

Birdie Sponsors
Baker Tilly Virchow Krause, LLP
Christiana Care Health Services
Premier Orthopaedics
Dan Sinnott

Closest to the Pin Contest Sponsor
Kimmel, Carter, Roman, Peltz, & O’Neill

Longest Drive Contest Sponsor
Arthur Jackson

Straightest Drive Contest Sponsor
WYE Realty Advisors

Hole-In-One Car Sponsor
Lexus of Chester Springs

Hole Sponsors
Arthur J. Gallagher & Co.
Darrell J. Baker, Esq.
Eckert Seamans, LLC
FusionSpark Media
Linda Barrasse
Miller Pipeline
MWealth Advisors
Nationwide Healthcare Services
PermaFloor Keystone Inc
Waters Medical Systems

If you visited the Gift of Life Howie’s House this summer, you may have met our former Guest Services Intern, Mya, smiling behind the front desk.

Mya came to Gift of Life Howie’s House looking to support an organization that has done so much for families like hers. Mya received her own precious gift of life—a new liver—and wanted to give back to others on the transplant journey. “I found this position online and immediately knew it was for me,” she says, smiling. “It’s amazing to see the work that’s done here. I would absolutely work here for 40 years if I could!”

Shortly after Mya was born, she was diagnosed with biliary atresia, a disease in which a liver duct is either broken or missing. Her doctors were able to perform a hepatoportoenterostomy, a procedure where doctors sewed a piece of her large intestine to her liver to help it drain. However, this was only a temporary treatment, and Mya and her family knew down the road that she would still need a transplant to live a healthy life.

Mya, right, and her friend at the beach before her liver transplant

“Throughout my whole childhood, I was very different,” Mya explains. “If you looked at me, you could tell something was wrong.” Growing up, Mya suffered from severe splenomegaly, which is an engorgement of the spleen as a result of liver fibrosis. “I looked like I was about six months pregnant. Whenever I played outside or was in gym class, I had to wear a large plastic guard around my abdomen to protect my spleen from rupturing. That was hard, especially as a child, because it makes you very different from your classmates; it makes you the ‘sick kid,’” she says.

When Mya was 11 years old, she caught a stomach bug—something not uncommon—but this time, she didn’t bounce back as she normally did. She was hospitalized, had to use Skype to attend class, and was unable to see her friends. She also lost a significant amount of weight and was given an NG feeding tube that she kept for over a year.

Mya was on the list for 18 months before she received her precious gift of life and spent time in and out of the Children’s Hospital of Philadelphia

Mya, her family, and her doctors knew her liver was deteriorating. She was placed on the transplant list at CHOP and waited 18 months until she received her precious gift of life from a selfless donor.

“It was a terrifying process,” Mya reflects. “I remember looking at myself and thinking that I looked like a skeleton, but I found peace in knowing that there was always an end road. My mom always told me, ‘Thank goodness it’s just liver disease. We know how to fix this, and it will all be okay.’”

Mya got the call on April 9, 2013, which she now calls “the best day of the year.”

“All I wanted in my life was to not be different. I wanted to experience life without limitation and sickness…transplant gave me that and much more,” she says.

The day Mya returned home after her transplant

Mya’s transplant remains an important part of her identity today at 19 years old. “I’m never going to stop being open about my transplant,” she says. “And I won’t ever stop caring about this. I’ll never stop reminding myself how much I have to be grateful for, and I’m never going to feel like I can do enough for the people who saved me. It’s so important to keep in touch with that gratitude and never stop using it to fuel my life. That’s why I’m here [at the Gift of Life Howie’s House].”

Mya helped coordinate guest stays, Gift of Life Howie’s House programming, and offered a smile to everyone who walked through the door

After working here at the House, Mya has changed her major to Health Behavior and Promotion and hopes to work with transplant patients in the future.

“Growing up, no one I knew had a connection to transplant. I was the only one, and I felt so alone,” she mentions. “Coming here, I don’t feel alone. You don’t feel like you’re the only one who is going or has gone through this kind of pain. I never had resources like this—it’s a really special thing about the House. It’s a whole big family here, full of love, support, and friendship. It’s heartwarming to see how much the guests love this place, and even more heartwarming to have played a role in it.”

Mya and other Guest Services Interns, Celine and Damarah, during the Gift of Life Howie’s House’s 7th birthday party

Mya also wants to write children’s books about getting a liver transplant or what it’s like having a feeding tube, and has thought about starting a blog about nutrition for those using a feeding tube.

“I am definitely going to make sure this experience remains part of my life and my daily awareness,” she adds. “I’ve looked forward to coming to work every day, and to be included in this environment and in [the Howie’s House’s] mission. Getting to know everybody has been so special, and I am so grateful for this incredible opportunity and place that I will never forget.”

One June morning, Joseph Mansaray woke up and found it difficult to breathe. His father, Peter, took him to the hospital where a chest x-ray revealed he had an enlarged heart. His doctor explained to him that the small, local hospital would not be able to help and had Joseph and his father transferred in an ambulance to another where he was admitted and spent 12 days in the ICU.

After several more tests, doctors there also felt there was nothing they could do to help Joseph. He and his father were transferred again, this time by helicopter, to a world renowned hospital in Philadelphia. Here, doctors were able to diagnose Joseph with cardiomyopathy, a disease of the heart muscle which makes it difficult for the organ to pump blood, and told him that he may need a transplant. Joseph’s mother, Mary, was also recently diagnosed with cardiomyopathy and was just beginning her transplant journey.

Doctors gave Joseph a left ventricular assist device, or an L-VAD, to help pump blood throughout his body, hoping it would strengthen his heart enough to later be removed. After surgery, Joseph was discharged to the Howie’s House where he and his father stayed during his recovery. His mother remained at home with his other siblings. A few weeks later, after three months in three different hospitals, Joseph and his father were able to join them. Life, however, wasn’t the same—Joseph couldn’t go to school, run, or play soccer.

That fall, Joseph returned to Philadelphia for a follow-up appointment where doctors found the L-VAD had not worked like they had hoped. Joseph’s heart was not healing and the next course of treatment was a heart transplant. Around this time, Mary had received her precious gift of life, but unfortunately, suffered major complications. She passed away in November 2015.

“Watching my mom’s transplant and what happened to her after was so hard for me. I was so sad that my mom had passed and also so scared that this was going to happen to me,” Joseph says.

Thankfully, his dad was there to support him.

“[Joseph] never complained. And as a dad and a caregiver, watching my son go through what he went through and handle it with such grace. It helped me. It really helped me,” Peter says.

In February 2016, Joseph received “the call” and was gifted a new heart thanks to a charitable act by a selfless donor. His recovery went smoothly, and 10 days after his surgery, he was discharged to the Howie’s House with his father once more.

“The House made life easier for me and my family during this time and I am very grateful for that,” Joseph says.

After a few more weeks, Joseph was able to return home. He was able to play soccer during his senior year of high school. Now he also plays in college.

“I thank everyone at the Howie’s House for all the good work they do every day and all that they have done for my family,” Joseph says. “They helped us through some of the hardest times in our lives, giving us somewhere to sleep, connecting us to other transplant families and donor families, and helping us when life was falling apart.”

“When the helicopter landed at the hospital in Philadelphia, I was alone with my son,” Peter explains. “I was afraid, worried, confused…but by the time we left [the Howie’s House], I left with a whole family.”

Peter is just one of the many strong husbands and fathers who stay at the Howie’s House. This Father’s Day, you can give them one less thing to worry about so they can focus on supporting their families and each other through such difficult times. Please consider making a gift to help support the fathers and sons like Peter and Joseph undergoing the transplant journey, or in honor of an important male figure in your life.

Click here to give!

 

 

Corey Baker received his precious gift of life—a set of lungs—last September from as a charitable act from a kind, selfless donor. He and his parents, Jack and Sharon, traveled from upstate New York to Philadelphia when they found out his pulmonary hypertension treatment would require a transplant.

Jack and Sharon stayed at the Gift of Life Howie’s House while their son received treatment and during his recovery. While Corey was in the hospital, his parents would use our shuttle to travel back and forth from the hospital each day. “The reason we chose to stay at the Gift of Life Howie’s House was because of the shuttle service. Sharon doesn’t drive and I didn’t feel comfortable putting her in a taxi when I couldn’t travel with her,” Jack explains. “Because it was free, traveling was a lot easier for us.”

When Corey was in the hospital, his mother used it every day to visit him. “I usually took the 8:00 a.m. shuttle in the morning and took the last one back around 5:00 p.m.,” she says. After his transplant, Corey took the shuttle at least three times a week to travel back and forth from the House and his rehab appointments.

Corey, Jack, and Sharon all agree that talking to our volunteer shuttle drivers and other transplant families who they met on their rides brought them hope and comfort. “Many of the drivers and guests told us about their own transplant journeys. It was nice to hear about their experiences and what they learned,” Sharon says. Jack and Corey enjoyed how comfortable they felt learning about the unfamiliar city they were now living in. “We loved how all the drivers explained the city to you. We live four hours away, and we don’t know it well. Around the holidays, it was nice to look at the buildings lit up. We’re from the country—we never see sights like that,” Jack explains.

Once Corey was feeling better, he and Sharon would take walks to different places the shuttle drivers pointed out. “We’d remember places, and once he got well enough, Corey and I would walk to them,” Sharon says. “It was a great way to get out and enjoy the weather.”

Last year, our shuttle transported more than 4,600 guests between the Gift of Life Howie’s House and Philadelphia’s transplant hospitals. Unfortunately, there were many trips when guests were turned away because the shuttle was too full or could not accommodate their needs, such as space for oxygen tanks and wheelchairs. Sharon herself experienced some of these issues. “There were times I was turned away from the shuttle because it was full. It seemed really, really busy,” she says.

This spring, the Gift of Life Howie’s House hopes to raise $50,000 to purchase a new, 11-passenger shuttle to better accommodate our guests. Our new shuttle will have more seating for our guests, a larger cargo area, and it will be easier for patients and their families with equipment or physical disabilities to get on and off.

To accomplish this, we need your help.

Our shuttle service alleviated the financial stresses the transplant journey can bring for the Baker family. Without it, the Bakers say they would have had a difficult time getting to and from hospital visits and doctor’s appointments. “We would have to use Uber, which can cost anywhere between $10 and $20 depending on the time of day,” Jack says. “One time, we took an Uber in a snowstorm and it cost us $82.”

“I didn’t even have access to Uber when we first got to the House,” Sharon adds. “I still had a flip phone.”

The Bakers understand our need for a larger, more accessible vehicle.

“There’s always someone going in and out of the Gift of Life Howie’s House,” Sharon says. “A lot of times, some people were too late or too early for the shuttle. Sometimes, there weren’t enough drivers. We’d see Joe, the manager, filling in a lot.”

“Extra seating would help a lot of people,” Jack says. “The bigger shuttle will be able to fit 5 more people. That’s a big difference.”

A gift towards our campaign for a new shuttle will help families like the Bakers feel comfortable traveling in a new, unfamiliar city during the often stressful transplant journey and help guests like Corey continue to get the care they need.

Please consider making a donation below:

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“There are a lot of misconceptions in the African American community about organ donation,” Keith Chalmers reflects. “People know very little about organ transplantation and I want to change that.”

Keith’s passion for organ donation awareness started with his own transplant journey about 7 years ago when he visited his family doctor for what he thought was just a bad cough. However, the cough didn’t get better. Over the course of two years, Keith was diagnosed with pneumonia, emphysema, and finally, COPD. Eventually, Keith’s journey led him to be placed on the organ waiting list.

Keith is very thankful to his pharmacist who first introduced him to the Gift of Life Howie’s House, where he stayed for four days in 2013 for testing at the Hospital of the University of Pennsylvania. He was listed for a lung transplant. Keith received his precious gift of life from a selfless donor in March of 2015. Now, he stays at the  House every 3 months for follow-up appointments.

“Without the Gift of Life Howie’s House, I wouldn’t have had a place to stay. I don’t think I could ever repay the folks there,” he says. “Everyone is so polite. If I didn’t live so far away, I’d be there volunteering every day. I’d help drive the van and clean up the house. Whatever I could do, I’d do.” 

Keith is able, however, to volunteer every year during Gift of Life Donor Program’s Donor Dash.

Keith also spends a lot of time educating people about organ donation, specifically in minority neighborhoods. “Knowledge of the entire process is less common in these areas,” he says. “Not many African Americans know what organ donation really means or how it works. It isn’t advocated in the media enough.”

He keeps literature about organ donation in the back of his car, stands on line at the supermarket and asks people if they are donors, hangs banners outside his home, and even sets up a Q&A table outside his house in the summer to engage people walking by. Last Christmas, he helped 50 people register as donors.

He is extremely grateful for his precious gift. “Somebody saved my life,” he says. “Because of that, I’ll be out there, educating one person at a time.”

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