News and Events
When Anthony Vetrano learned his father, Joe, would need a life-saving organ transplant, he and his mother, Teresa, became his caregivers. They both stayed at the Howie’s House for 11 days while Joe received his transplant in Philadelphia this past September.
“The Howie’s House allowed me and my mom to be close to the hospital and spend more time there with my father as he recovered from his transplant,” Anthony says. “We’d have to drive 100 miles back and forth from our homes in New Jersey if we didn’t have another place to stay.”
The Howie’s House supported Anthony and Teresa as caregivers while they supported Joe during his treatment and recovery. “As a caregiver, you focus on the patient and less on yourself,” Anthony says. “At the Howie’s House, there’s someone to focus on you.”
Something that really supported Anthony was our Home Cook Heroes program, which offers a warm, home-cooked meal to guests each night as they wind down from what can be long, stressful days. “A meal was really nice to come back to,” Anthony says. “It was also nice to eat and talk with other families who understand what you’re going through.”
While Anthony was staying in Philadelphia, he had the idea to host a Facebook fundraiser to support the Howie’s House. “My Facebook friends know about my father’s transplant and I thought I could use my experience to help other families like ours,” Anthony says.
Because his birthday was coming up, Anthony decided to “give it up” and ask for donations to the Howie’s House in lieu of gifts.
Anthony hosted a fundraiser for two weeks and with the help of the people he loves, exceeded his fundraising goal!
“Some of my Facebook friends asked me what the fundraiser was about which even helped me raise awareness about organ and tissue donation,” Anthony says. “Not many people know about donation and transplant until they need one.”
It’s caring people like Anthony that help us continue to be a “home away from home” for transplant families coming to Philadelphia. His generous decision to “give up his birthday” on Facebook and raise money for the Howie’s House helps support families like his own as they navigate the difficult transplant journey.
“I would definitely host a Facebook fundraiser again…it was so easy!” Anthony says.
“It’s hard to go through something like transplant and not be changed by it. I want to help out as much as I can.”
Thank you, Anthony, for spreading our mission and supporting the Howie’s House!
Are you interested in “giving up your birthday” or hosting a Facebook fundraiser to support the Howie’s House like Anthony did? Learn how to here: http://bit.ly/fb-fundraiser-info
What a beautiful day we had for our 14th Annual Kidney Open Golf Outing on Monday! We really sank a “hole-in-one” for our transplant families and made the outing a huge success!
Thanks to the participation and generosity of our community, we raised more than $108,000 to support our Adopt-A-Family Program, which will help us continue carrying out our mission to care for transplant families in need, even to those who cannot afford our nightly fee.
Thank you so much!
Remembering the words of Steve and Audrey, our guest speakers and past Howie’s House guests: “The Howie’s House provides you with what you need to get through transplant…and they give you a family. You feel like you belong.”
It is your support that helps us remind those undergoing the transplant journey they are not alone. While Steve was recovering from his lung transplant, Audrey was able to stay by his side here at the Howie’s House. Whether you joined us for a day of golf, sponsored part of our outing, or volunteered to support our staff, you helped make more experiences like Steve’s and Audrey’s possible.
If you were unable to attend this year’s outing, we hope to see you next year at the 15th Annual Kidney Open Golf Outing!
We’d also like to thank all of our sponsors for supporting this event! Thanks to your help, our transplant families will be well taken care of!
Golf Cart Sponsor
Main Line Health
Dinner Sponsor
Bridge to Life
Gift and Putting Contest Sponsor
NORA – Nationwide Organ Recovery Transport Alliance
Double Eagle Sponsors
AmeriHealth Caritas
CSL Behring
Glenmede
Highmark Blue Cross Blue Shield Delaware
Quick Courier Service
VRL Eurofins
Apparel Sponsor
Community Tissue Services
Eagle Sponsors
Beneficial Bank
Elite Landscaping
Independence Blue Cross
Lions Eye Bank of the Delaware Valley
Mohan USA
Organ Recovery Systems
The Palopoli Family Trust
TD Bank
Venture Jets
Beverage Cart Sponsor
Lincoln Financial Group
Lunch Sponsor
LifeNet Health
Registration Sponsor
QuickSTAT
Course Refreshment Station Sponsors
Sightlife
Sovereign Insurance Group
Coffee Station Sponsor
Gillespie Electric, Inc.
Practice Range Sponsor
CTI Clinical Trials
Einstein Healthcare Network
Birdie Sponsors
Baker Tilly Virchow Krause, LLP
Christiana Care Health Services
Premier Orthopaedics
Dan Sinnott
Closest to the Pin Contest Sponsor
Kimmel, Carter, Roman, Peltz, & O’Neill
Longest Drive Contest Sponsor
Arthur Jackson
Straightest Drive Contest Sponsor
WYE Realty Advisors
Hole-In-One Car Sponsor
Lexus of Chester Springs
Hole Sponsors
Arthur J. Gallagher & Co.
Darrell J. Baker, Esq.
Eckert Seamans, LLC
FusionSpark Media
Linda Barrasse
Miller Pipeline
MWealth Advisors
Nationwide Healthcare Services
PermaFloor Keystone Inc
Waters Medical Systems
If you visited the Gift of Life Howie’s House this summer, you may have met our former Guest Services Intern, Mya, smiling behind the front desk.
Mya came to Gift of Life Howie’s House looking to support an organization that has done so much for families like hers. Mya received her own precious gift of life—a new liver—and wanted to give back to others on the transplant journey. “I found this position online and immediately knew it was for me,” she says, smiling. “It’s amazing to see the work that’s done here. I would absolutely work here for 40 years if I could!”
Shortly after Mya was born, she was diagnosed with biliary atresia, a disease in which a liver duct is either broken or missing. Her doctors were able to perform a hepatoportoenterostomy, a procedure where doctors sewed a piece of her large intestine to her liver to help it drain. However, this was only a temporary treatment, and Mya and her family knew down the road that she would still need a transplant to live a healthy life.
“Throughout my whole childhood, I was very different,” Mya explains. “If you looked at me, you could tell something was wrong.” Growing up, Mya suffered from severe splenomegaly, which is an engorgement of the spleen as a result of liver fibrosis. “I looked like I was about six months pregnant. Whenever I played outside or was in gym class, I had to wear a large plastic guard around my abdomen to protect my spleen from rupturing. That was hard, especially as a child, because it makes you very different from your classmates; it makes you the ‘sick kid,’” she says.
When Mya was 11 years old, she caught a stomach bug—something not uncommon—but this time, she didn’t bounce back as she normally did. She was hospitalized, had to use Skype to attend class, and was unable to see her friends. She also lost a significant amount of weight and was given an NG feeding tube that she kept for over a year.
Mya, her family, and her doctors knew her liver was deteriorating. She was placed on the transplant list at CHOP and waited 18 months until she received her precious gift of life from a selfless donor.
“It was a terrifying process,” Mya reflects. “I remember looking at myself and thinking that I looked like a skeleton, but I found peace in knowing that there was always an end road. My mom always told me, ‘Thank goodness it’s just liver disease. We know how to fix this, and it will all be okay.’”
Mya got the call on April 9, 2013, which she now calls “the best day of the year.”
“All I wanted in my life was to not be different. I wanted to experience life without limitation and sickness…transplant gave me that and much more,” she says.
Mya’s transplant remains an important part of her identity today at 19 years old. “I’m never going to stop being open about my transplant,” she says. “And I won’t ever stop caring about this. I’ll never stop reminding myself how much I have to be grateful for, and I’m never going to feel like I can do enough for the people who saved me. It’s so important to keep in touch with that gratitude and never stop using it to fuel my life. That’s why I’m here [at the Gift of Life Howie’s House].”
After working here at the House, Mya has changed her major to Health Behavior and Promotion and hopes to work with transplant patients in the future.
“Growing up, no one I knew had a connection to transplant. I was the only one, and I felt so alone,” she mentions. “Coming here, I don’t feel alone. You don’t feel like you’re the only one who is going or has gone through this kind of pain. I never had resources like this—it’s a really special thing about the House. It’s a whole big family here, full of love, support, and friendship. It’s heartwarming to see how much the guests love this place, and even more heartwarming to have played a role in it.”
Mya also wants to write children’s books about getting a liver transplant or what it’s like having a feeding tube, and has thought about starting a blog about nutrition for those using a feeding tube.
“I am definitely going to make sure this experience remains part of my life and my daily awareness,” she adds. “I’ve looked forward to coming to work every day, and to be included in this environment and in [the Howie’s House’s] mission. Getting to know everybody has been so special, and I am so grateful for this incredible opportunity and place that I will never forget.”
Each year, members of Gift of Life Howie’s House community hold Facebook fundraisers to raise money for our mission of being a “home away from home” for transplant families. Some people give up their birthdays and ask their Facebook friends to donate to our cause in lieu of gifts, and others fundraise in honor or memory of a loved one. Whatever the reason, we are extremely grateful for each and every one!
Hosting a Facebook fundraiser is an easy, fun, quick way to support our mission. It’s also a great way to get your friends involved and share your story to your community.
Signing up is easy! Simply click the link below, set your goal, share your story, and press “create” to share with your friends and family!
Join the many others who have already supported us and set up your Facebook fundraiser today!
The annual Gift of Life Volunteer Recognition Ceremony, a day where we recognize the compassion, dedication, and hard work our volunteers bring to the Gift of Life community, took place on June 9th.
The Howie’s House had the opportunity to present four awards—the Home Cook Heroes Award, the Heartman Award, the Fundraising Ambassador Award, and the Guest Services Award. We are so incredibly proud and humbled by all of our volunteers and couldn’t have been happier to honor them in this special way.
We presented our Home Cook Heroes Award to New Vision Pioneers, who, led by Jody, have been volunteering with us since the spring of 2015. Since then, they have come in 36 times to date and have served nearly 2,000 meals to families who came a long way to receive treatment in Philadelphia.
The Heartman Award was given to Janice Schwartz Donahue. Janice has been volunteering with Gift of Life for over 20 years, first getting involved with her daughter, Jessica, who was a heart transplant recipient. Sadly, Jessica passed away, but Janice continues to carry on her legacy by coordinating Jessie’s Day with her other daughter, Laura, every year to give the gift of education to organ transplant recipients who are looking to attend college.
Janice is also a weekly volunteer at the Howie’s House. Every Wednesday, you’ll find her in the kitchen warmly welcoming and supporting the Home Cook Heroes volunteer groups, giving tours, setting up and cleaning up, or doing whatever is needed to make sure the kitchen operations are running smoothly.
She has become part of the Howie’s House “family” and we just love having her with us each week. To date, Janice has contributed over 900 hours of her time to supporting the Howie’s House!
This year, the 2018 Fundraising Ambassador Award, which recognizes a volunteer, group, or organization that has demonstrated exceptional leadership in coordinating, motivating, and successfully completing fundraising efforts for Gift of Life Howie’s House, was given to the Penkala Family.
In an effort to honor his son Paulie and raise awareness about organ and tissue donation, Paul Penkala, along with family and friends, hosts an annual golf tournament and graciously donates all of the money raised to Gift of Life Howie’s House.
In 2011, the family pledged $25,000 to underwrite the Howie’s House resident laundry room in their son’s name, because, as Paul put it, “Paulie was always particular about ironing his clothing.”
Even though they fulfilled this pledge a few years ago, the Penkalas continue to host their outing to support our Adopt-A-Family Program.
The Penkalas also volunteer in the House as Home Cook Heroes, preparing and serving home-cooked meals to our guests, and in the community by participating in speaking engagements, sharing their donation story, and spreading awareness for organ and tissue donation.
The Penkala family has accomplished so much and we are so grateful for all you’ve done for the Howie’s House, our transplant families, and the transplant community.
Lastly, our Guest Service Award was given to Ginneh Earle. Ginneh began volunteering at the Howie’s House in 2014 and has generously contributed over 400 hours of her time since joining our team.
Anyone who has been at the Howie’s House on a night where Ginneh is helping knows that they are instantly in good hands, as she makes sure that our Home Cook Heroes groups have everything they need, and always doing so with a welcoming smile. She often will stay at the Howie’s House until after 9pm, making sure several times that there is really nothing else she can do to help!
In addition to being a friendly presence at the Howie’s House on a weekly basis, Ginneh also has volunteered at the Dash and President’s Reception.
Ginneh does not have a direct connection to transplantation, but says that she just wants to help, and we can’t thank her enough for that. Her leadership, kindness, and commitment to support and comfort transplant patients, families, caregivers, and fellow volunteers is truly admirable.
Our volunteers play such an important role at the Howie’s House and we are so grateful for their help—thank you so much!
Gift of Life Howie’s House would like to welcome the newest member of the Gift of Life Howie’s House Advisory Board, Bill Soloway! Bill is a heart transplant recipient, receiving his precious gift of life in June of 2015 thanks to a selfless donor. He is well known for his community advocacy, his relationship building, and his endless energy. “You have one life to live and eight lives to give,” he says. “Become an organ donor. My life depended on it.”
In the mid-1990s, Bill was diagnosed with hypertrophic cardiomyopathy, an inherited condition where heart muscle cells become enlarged, altering the structure and function of the heart. Bill lost his 27-year old brother to the same condition.
Before his transplant journey, Bill loved cycling. During his post-transplant recovery, Bill was inspired by stories he heard about the Transplant Games, a multi-sport event for individuals who have undergone life-saving transplant surgeries. Just 10 weeks after his transplant, Bill got back on his bike. This year, Bill will compete in both the Transplant Games’ 5K and 20K bicycle races, as well as in badminton, volleyball, and pickleball.
Bill honors his donor and donor family through his work in the community including service as a Gift of Life Ambassador, HUP Heart Transplant Support Group member, Team Philadelphia member, TRIO Philadelphia Chapter Board member, UNOS Ambassador, Masonic Blood+Organ Donor Board member, and a Help Hope Live committee member. Bill is also an Eagle Scout.
When asked about the Howie’s House, Bill says: “Being a heart transplant recipient, I understand the many trials and tribulations that families go through in the transplant process. To have a place that is a safe port for transplant families to anchor in after a long day at the hospital means an awful lot, especially to those families that are not familiar with the Philadelphia area. I believe in everything the Gift of Life Howie’s House stands for and am honored to be a part of such an amazing organization.”
Sovereign Insurance Group of Devon, PA, a longtime partner of Gift of Life, made a generous gift to support our mission of providing a “home away from home” to transplant patients and their families.
The group underwrote the South Porch on the front side of our building.
“I’m so thankful for the folks who had the vision to make Gift of Life Howie’s House a reality,” says Mark, an employee with Sovereign Insurance Group who understands how our mission impacts families. “My family and I were the beneficiaries of a similar vision when my mom was hospitalized for an extended period of time at West Virginia University Hospital and a number of us stayed at the Rosenbaum Howie’s House in Morgantown, WV. It’s such a blessing to have a warm and friendly place to stay when you’re otherwise totally stressed out and far from home. Thanks for all you do!”
His co-worker, Eric, adds: “Having the Gift of Life Howie’s House available to the families and loved ones of patients is truly a blessing beyond words. Sovereign Insurance Group is honored to help make “a home away from home” a reality for the transplant patient families who need the supportive and caring services you provide. Our heartfelt thanks to all the staff and many volunteers who help make the Howie’s House a reality.”
We’d like to thank Sovereign Insurance Group for supporting our initiatives to give transplant families one less thing to worry about. Thanks to you, we can continue providing our services to create a comfortable, safe, and warm place for them to stay!
Do you remember when we asked you to write an encouraging note to our transplant families as a part of our Welcome Them Home campaign?
Last fall, we set out to collect 1,000 encouraging messages from caring people like you to transplant patients and their families.
We had these notes sewn together into a beautiful welcome banner that is now hanging in our dining room to welcome our transplant families home after long, hard days at the hospital.
It is our hope that these words of encouragement, wisdom, and strength will bring hope to our guests during a difficult journey and that support from our community will bring them joy and peace.
Some of the notes read:
“Welcome to warm hospitality, a comfy bed, warm meals, and a listening ear.” –Lorraine
“You are strong and courageous.” –Anonymous
“Stay strong. The people who work here and the other families will be your greatest support.” –Anita
“This is your home to find comfort in and share with those who understand.” –Rob
“There is hope and love, much of it found right here. Ne strong, never give up!” –Tibor
“Difficult roads often lead to beautiful destinations here at the Howie’s House. Welcome.” –Ed
“You’re patient and loving.” –Anonymous
“Hang in there. Things will get better. Never lose hope.” –Mary Ellen
Thanks to you, we can remind our transplant families of the support they have. No one’s transplant journey will be exactly the same, but finding ways to support one another is a crucial part of helping our families feel comfortable, safe, and supported.
Thank you for being part of such an inspiring project!
Since 1996, Gift of Life Donor Program has hosted the Donor Dash to promote organ and tissue donation and to raise funds to educate the community about the critical need for more people to register as organ and tissue donors.
All proceeds received through fundraising for the Donor Dash benefit Transplant Foundation, the charitable foundation supporting the mission of Gift of Life Donor Program. All funds raised at the Donor Dash go to support programs and activities designed to increase organ and tissue donor awareness, including sponsorship of Team Philadelphia’s participation in the Transplant Games of America, programs and activities in support of donor and recipient families, including the Gift of Life Howie’s House.
Register Now
The Dash celebrates the life-saving power of donation and honors all of the donors who make it possible. By supporting Gift of Life and the Donor Dash, you will help raise awareness about the critical need to increase the number of those registered as organ and tissue donors. We are looking to partners like you to help make a difference in the lives of those affected by organ and tissue donation. There are more than 5,400 people men, women, and children waiting in our region for a second chance at life through an organ transplant. You can help us make a difference!
Event Details
- Date: April 14
- Location: Philadelphia Museum of Art
- 10K run begins 7:10am
- 5K run begins 7:20am
- Kids Fun Run begins 7:45am
- 3K walk begins 8:30am
Registration:
Now through noon on April 9, 2019:
- 3K Walker: $30
- 3K Walker Upgrade: $55*
- 5K Runner: $35
- 5K Runner Upgrade: $60*
- 10K Runner: $40
- 10K Runner Upgrade: $65*
*Upgrade by March 14 to receive a Dash tech tee and running hat. Gift of Life will mail your tech tee and running hat before the Dash!
On August 28, 2017, Alicia Hoover, a former Howie’s House guest, delivered a warm heartfelt speech about her transplant journey. She also described how Gift of Life Howie’s House supported her and her family throughout the whole process. Read below as Alicia addressed the attendees of the 13th Annual Kidney Open Golf Outing.
“First of all, I would like to thank you all for allowing me to be a part of this amazing fundraising event. The family house has done so much for myself and my family over the last few years. They have become and continue to be a second family to all of us.
My father and I were both diagnosed with Idiopathic Pulmonary Fibrosis. This lung disease is terminal. After diagnosis life expectancy is on average 2-4 years. The only treatment currently available is a lung transplant.
On March 1, 2013 two days before my dad’s 46th birthday he received his call and was on his way to the University of Pennsylvania Hospital in Philadelphia to receive his new set of lungs. The transplant was successful, however after a 6 month recovery in the hospital many complications my dad lost his battle and passed away on August 21,2013.
At the time of his passing, I was almost 5 months pregnant with my 3rd child. From that point forward I was on oxygen full time. I went as high as 20 liters of oxygen at some points just to walk across the living room. I ended up going into respiratory failure and having an emergency c-section at only 32 weeks in my pregnancy. I delivered a healthy 4lb baby boy. We named him Chance Edward. After 2 weeks in the NICU Chance came home with us to join his big brother Jace and his sister Kyrstin.
Less than a year later I was ready to begin my transplant journey. I was evaluated and placed on the list at Temple University in Philadelphia awaiting a double lung transplant. I waited about 1 ½ years and finally my call came. I received my transplant on February 29,2016. As you can tell my surgery was a success. During all of these surgeries and appointments my mom and my husband, Dave, stayed at the Howie’s House while we did our job in the hospital on the road to recovery from our transplants.
The Howie’s House offers so much to its patrons that stay there. We have met and continue to meet so many amazing people waiting on transplants or recovering from their transplants.
And it’s not just the patients, it is their family and loved ones as well. The Howie’s House allows all these people to come together and create a great support system for the patients but also for the caregivers. I have been on both ends and I truly believe the caregivers have a way harder job than the patient in my eyes. The Howie’s House offers support groups for the caregivers which is a huge necessity. The staff will go above and beyond for any one of us staying there.
They are genuine and care about all the families that come through there. To them you are not just a number. They know you. They ask how your children are doing back home. They know you by name. I love going there and meeting so many people, sharing our stories, eating dinner with so many people who are stronger than they ever thought they could be. I am thankful for the Howie’s House as it has not just offered a place of shelter for my family but provided me with a whole other family that I love and care about as if they were my own blood relatives. Thank you to all of you for your time and generous donations that benefit this amazing home for so many people. Without the Howie’s House there would be patients and their families lost among the health care system not knowing which way to go. The Howie’s House gives them a sense of direction and allows them to meet others that are going through the same situations so they tend to guide one another on each journey. All of you are amazing for being here today and if you take anything from what I have said today, please walk away knowing that the money you raised today is going to an amazing cause for some incredibly strong individuals. You are making it possible for the Howie’s House to offer an environment that is safe to people going through extremely rough times in their lives and again for that, I thank you.”
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