Campaign and Supporter Stories
In today’s age of technology, a simple Facebook search can reunite long-lost friends, but it can also lead to the greatest gift of life—an organ transplant. Spending their summers growing up together in South Amboy, NJ, Gail Boscian and Mary Casey-Griffin grew incredibly close. However, after their families moved away from one another, they lost touch for about 30 years until they were reunited through social media.
“I have plans to live. We had many good times and they are not over yet—they are just beginning. This is the next chapter of our lives.” – Mary Casey-Griffin
Mary, born with polycystic kidneys, was officially diagnosed with Kidney Cancer around age 45. At that point her health rapidly declined. Having worked as an art teacher for 25 years, she tried to continue her work in administration but her health impeded her career. On peritoneal dialysis for 10 hours a day, “I was tethered to my bed –it was really getting me depressed.” In 2015, she was diagnosed with kidney cancer and needed a nephrectomy—removing both of her kidneys this past September. Her husband, son and daughter-in-law all wanted to be her living donor but were unfortunately unable to.
Meanwhile in Ohio, Gail had recently moved back to be with her family and future husband. Having just received foot surgery in March of 2015, Gail was confined to the couch for eight weeks during recovery. After playing around on social media out of sheer boredom, she remembered her long lost friend, Mary, and decided to do a search for her. After plugging her name in on Facebook, there she was! They connected and quickly became friends again.
Gail explains, “We started talking on the phone and I found out about her kidney and I said, ‘Oh, no, no, no, no—you can’t live like that!’” So without hesitation, Gail offered to be tested to see if she was a match to be Mary’s living kidney donor.
Just five months later, in August, she discovered she was an exact match for Mary. Out to lunch with two friends on a random afternoon, Mary received a call from Gail: “I just heard from our transplant center and it’s a go!”
Mary recalls, “I couldn’t even talk… I was crying and I couldn’t believe she would do something so selfless.”
Gail has struggled with the attention this selfless donation has ignited. She explains, “I don’t like people saying how wonderful I am for wanting to help my friend. I guess it’s amazing to me that more people don’t donate. I love her, she’s become like a sister to me.”
After endless phone conversations, these two women finally had the opportunity to reconnect in person before the scheduled surgery as guests of Gift of Life Howie’s House.
Upon arrival they were both immediately impressed with the Howie’s House and all the services provided to transplant families. Gail’s impression of the facility was simple: “I Love it,” she says, “there is just so much to do here!” Mary calls the Howie’s House “a godsend; I cannot imagine how important the Howie’s House is to the people that stay here. The Library alone is just amazing – it’s worth every stay here!”
Sitting around a table in the Howie’s House dining room eating Jell-O and beef broth, they were anxious to try all the delicious food prepared by the Home Cook Hero volunteers. Not being able to eat before surgery, they were dreaming of hoarding the cake from the night’s volunteers to save for a post-transplant treat.
We are happy to say that Mary and Gail’s surgeries went very well and both are recovering here at the Howie’s House. And now, looking to the future, the opportunities are endless. Mary says “I see myself living. I want to go to Ireland, New Orleans, Las Vegas, Ohio—to visit Gail—to take a few art classes. I have plans to live. We had many good times and they are not over yet—they are just beginning. This is the next chapter of our lives—we took a brief hiatus and now we are back!”
At the Howie’s House love is manifested in many ways – consider joining our mission to support and show love for transplant patients and their families. Learn how to get involved or show your support through a financial gift visit, www.GiftofLifeFamilyHouse.org.
By: Allison McDaniel
As the festivities of Hanukkah begin this weekend, many families will celebrate the holiday with eight nights of lights and presents that bring joy to children and parents alike. Many others will have a more challenging journey, as they face their first holiday after the loss of a loved one.
Philadelphia native, Betsy Horen, was married to her husband and best friend, Bob, for more than 40 years before he passed away last year. They traveled the world together and were a perfect match. They both worked hard and had successful careers, but always kept a firm focus on living life to its fullest and enjoying every moment – whether it was going to the theater, visiting their time share in London, or going to their synagogue, Beth Zion-Beth Israel (BZBI), where they were part of a close-knit, supportive community.
Although this holiday will be a difficult one for Betsy, she speaks with gratitude about the nearly ten years that Bob was able to live because of one person’s selfless decision to say yes to organ and tissue donation. Bob had been diagnosed with Amyloidosis, a condition that causes abnormal protein to build up in tissues and organs. The disease attacked his kidneys, resulting in him needing a kidney transplant to survive.
“I feel like we were so lucky to receive the call that there was a perfect kidney for Bob.” said Betsy. “We were also lucky that Bob was healthy for so long and we were really able to celebrate and experience life together. Our lives were for each other, and I am grateful that he was able to live and share so many wonderful experiences.”
Betsy uses the word “luck” often, and expresses a deep gratitude for the life she was able to share with him. Since Bob’s diagnosis, the couple promoted organ donation at their synagogue by hosting The Robert Horen Annual Donor Shabbat, which educated other members about his transplantation journey and the critical need for individuals to register as donors. In addition, Bob spoke in support of donation in the community and at local schools. Betsy also became an advocate for donation during the time that Bob was waiting for his transplant. She began volunteering for Gift of Life Donor Program to give back, and became a huge supporter of Gift of Life’s Howie’s House, a “home away from home” for transplant patients and their families.
Since Bob’s passing, Betsy has dedicated an area – a gateway to the Legacy Garden – at the Howie’s House in Bob’s name and has also honored his memory with a memorial paver in the garden. Betsy said, “It’s so peaceful to sit in the garden and to realize how fortunate all of us are, and how lucky the people are that are able to stay at the Howie’s House. When Bob was first diagnosed, we would have to travel back and forth from Philadelphia to Boston for treatments. Because of his restrictive diet, we couldn’t eat at restaurants, so we had to bring containers of food with us. Going through it, I understand how the Howie’s House really gives people peace of mind.”
Religion has played a major role in Betsy’s life, and it will continue to this holiday as she navigates it without Bob. She proudly describes the numerous heartfelt dedications that she has made in his honor at their synagogue. Her goal is to dedicate a plaque on the seat where Bob always sat at BZBI – right next to her.
Gift of Life Donor Program has worked tirelessly for the past 41 years to coordinate donors’ generosity with those in need. Since 1974, Gift of Life – the organ procurement organization for eastern PA, southern NJ and DE – has helped save nearly 40,000 lives through organ donation, and enhanced over half a million lives through tissue donation. For more information or to register, visit donors1.org. It only takes 30 seconds to register.
Gift of Life Howie’s House is privileged and grateful to be selected as a 2015 Teva Community Partner in Pennsylvania.
Teva Pharmaceuticals is a global pharmaceutical company specializing in generic and specialty pharmaceuticals. Teva is committed to improving not only the healthcare of their consumers—approximately one out of every eight pharmaceutical prescriptions is filled with a Teva product—but to improving the health of the communities they serve. Through selected yearly community partnerships, Teva supports patient and caregiver focused organizations with a goal to improve overall healthcare around the globe.
The partnership opportunity was introduced by Teva Associate Manager and CSC Study Leader Charles “Chuck” Loshnowsky. Featured in the Howie’s House Spring 2015 Newsletter, Chuck and his wife Nicki have found that volunteering over the last ten years has helped them immensely on their journey towards healing after the loss of their son Collin in 2004. First volunteering with the Gift of Life Donor Program and more recently with the Howie’s House, the Loshnowskys choose to honor their son Collin with acts of compassion and generosity.
After being struck by a car, five-year-old Collin was taken from this world far too soon, but his incredible spirit is still felt as strongly as ever. Collin not only saved the lives of five people by donating his two kidneys, intestine, liver and heart, but his legacy, carried on through the kindness and selflessness of his family, has touched countless lives over the last decade. Collectively known as Team Captivated by Collin’s Smile, the Loshnowskys and friends have truly made an impact on the Gift of Life community. Regular Home Cook Hero and DASH participants, Team Captivated by Collin’s Smile has also hosted wish list drives and competed in the Transplant Games of America in memory of Collin.
This past November for Collin’s 10th “Angel-versary”, Nicki Loshnowsky created a special Facebook campaign in remembrance of her young son. “10 Random Acts of Kindness for Collin Loshnowsky” came to Nicki on one particularly difficult evening, giving her something positive to focus on and look forward to, an idea she firmly believes Collin planted in her head as his way to give her hope. Team Captivated by Collin’s Smile participated in the Howie’s House’s Home Cook Heroes program ten times before the end of 2014 as their official ten acts, though their kindness far exceeds that every visit they make to the Howie’s House.
The Home Cook Heroes program provides delicious, fully prepared and nutritious meals for Howie’s House guests to enjoy after long days spent at the hospital, bringing a great deal of relief to the transplant families who often do not have the time, resources or energy to cook themselves.
As community partners, Teva Pharmaceuticals will not only support the Howie’s House through a financial contribution, but their employees will also be volunteering regularly on-site, all thanks to the Loshnowskys’ introduction. Different departments within Teva will visit the Howie’s House during the year.
In another act of true generosity, on the 21st of May 2015, Gift of Life Howie’s House officially unveiled the vestibule, newly underwritten as a gift from Teva Pharmaceuticals in memory of Collin Loshnowsky. Serving as the main entrance to the Howie’s House, the vestibule will now welcome Howie’s House guests in the spirit of Collin, his infectious smile and his wonderful “belly laugh.”
Says Nicki, “[As a donor family] so much of our healing has been because of the positive effects we have witnessed first-hand through organ donation… as well as the many wonderful people we have met on this journey.”
Gift of Life Howie’s House is honored to be a part of the healing process for all of our families— transplant and donor—and are excited to welcome Teva Pharmaceuticals as a community partner. It is through community support and corporate sponsorship that Gift of Life Howie’s House is able to help brighten thousands of transplant patients and their families’ journey to wellness by providing a “home away from home” to all of our guests.
It can take just one person to inspire meaningful change, and at the Lawrenceville School in Lawrenceville, NJ, for many students that one person is Arthur Thomas. Arthur is a heart transplant recipient who shared his transplant story with the student body six years ago. Moved by his life-saving experience, students Taylor Bloom and Mary Hopkins heard it as a call to action to raise awareness about organ donation, and from there, the Lives Saving Lives Club was created. With Arthur as its faculty adviser, the club has blossomed into a successful, student-run initiative to raise awareness and funds for organ donation.
Now, with nearly 30 active members, the Lives Saving Lives Club holds a number of fundraisers, including a raffle giveaway and the Annual Organ Donor Awareness Benefit Dinner. Much like the club itself, this benefit dinner is completely student-operated. From the string quartet performance to the four-course meal, these young leaders work tirelessly to make this a memorable evening – and what a success! This past year, the dinner raised $5,000 for the transplant patients and families of Gift of Life Howie’s House, proving their hard work has truly paid off.
Since 2009, these motivated students have raised an incredible $27,400 for the Howie’s House! Their outstanding support and dedication to our mission helps provide our guests with comfortable lodging, hot meals, a fully stocked pantry, a free shuttle service and so much more. Such support helps alleviate stress our patients and families face day-to-day – mentally, physically and emotionally. To further support the Howie’s House, the Lives Saving Lives Club has also served as wonderful Home Cook Heroes, cooking a delicious meal for our guests.
This past month, the Howie’s House was happy to receive a visit from Arthur and four other Lives Saving Lives Club members. Arthur was proud to
show these dedicated students how their fundraising efforts directly impact the Howie’s House. It all came full circle for these students when they saw their permanent paver located in our Legacy Garden that states, “The Lawrenceville School Proudly Supports Gift of Life Howie’s House.”
While Arthur did not stay at the Howie’s House himself, he emphasizes the importance of providing support to transplant patients and their families, as he has a firsthand understanding of the difficulties they may be experiencing. “Anything we can do to make their lives easier is worth it,” says Arthur. These students demonstrate that age is only a number when it comes to effectively creating change in the lives of our guests. Thank you to Arthur and all of the students of the Lawrenceville School for bringing the Lives Saving Lives Club to fruition and supporting our mission!
Nicki Loshnowsky never anticipated having to designate her five-year-old son, Collin, as an organ donor. And yet, in November 2004, the Loshnowsky family faced a heart-wrenching decision after Collin was struck by a car and suffered severe head trauma. With their world flipped upside down, the Loshnowsky’s found some light in a tragic situation by choosing donation, and subsequently saving five different lives by donating Collin’s intestine, two kidneys, liver and heart – true gifts of life. Through the Loshnowsky’s active involvement with Gift of Life Donor Program and Gift of Life Howie’s House, they have found means to heal, as well as to celebrate Collin’s wonderful life, all the while promoting the incredible impacts of organ donation.
Over the last 10 years, the Loshnowsky family has been involved in a number of Gift of Life initiatives in Collin’s memory. At the Transplant Games of America, an Olympic-style athletic competition for transplant recipients, organ donors and donor families, the Loshnowsky family has been an integral member of Team Philadelphia as honoring their son and connecting with other families who have found themselves on the same side of transplantation. At the Dash for Organ and Tissue Donation, the family bans together as team “Captivated by Collin’s Smile” to demonstrate, through strength in numbers, how organ donation saves lives. The Loshnowsky family will always remember Collin’s infectious smile and his wonderful “belly laugh.”
This past November was Collin’s 10th “Angelversary”, and the Loshnowsky family chose to honor his life by inspiring individuals to perform ten random acts of kindness. Doing their own part, the Loshnowsky family has made it their fervent goal to participate in the Howie’s House Home Cook Heroes program 10 times by the end of 2014, preparing meals for the Howie’s House transplant patients and their families. It is through this program that they are able to share experiences and stories with the guests – what Nicki always looks forward to most. The Loshnowsky’s Home Cook Hero meal on December 2nd will be an extra special dinner in honor of Collin’s 16th birthday.
The support provided by the Loshnowsky family never ceases to amaze us, as they have also hosted successful Wish List Drives in memory of Collin to further support the Howie’s House mission. While Collin cannot be here today, his name and memory will forever be honored through the family’s dedication to Gift of Life.
To learn more about how you can participate in Collin’s 10th “Angelversary”, please visit https://www.facebook.com/events/529946973806475/. And don’t forget to share Collin’s story this holiday season as you partake in your own random acts of kindness – just use the hashtag “#cjl10years” when posting on your social media pages.
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