By: Talia Giordano, MSW, LSW

Gift of Life Howie’s House Social Worker

Being evaluated for a transplant can feel overwhelming, with many medical tests and appointments. Once eligible and placed on the waiting list, patients and families may feel stuck in a “holding pattern,” where the main task is simply to wait. This period often brings anxiety and depression, making daily life difficult.

One transplant recipient shared how stressful waiting was for him and his wife. Patients often feel daily anxiety, not knowing when they might need to rush to the hospital or fearing they might not get an organ in time. Family members share similar worries, including fear for their loved one’s survival and the emotional weight of knowing someone else must pass away for the transplant to happen.

If you or someone you love has suicidal thoughts or feels overwhelmed, seek help right away. Visit your local hospital emergency room, call the National Suicide Prevention Lifeline at 988 (available 24/7 in the U.S.), or text “HOME” to 741741 to connect with a crisis counselor. Your transplant social worker can also guide you to resources like counseling, therapy, or support groups. Symptoms of depression or anxiety, such as changes in sleep or appetite, fatigue, guilt, hopelessness, or crying spells, should never be ignored.

Support groups are a great way to share feelings and connect with others who understand the transplant journey. Your transplant social worker can help you find a group in your area. The Caregiver Lifeline Program is another valuable resource for emotional support.

Remember, while waiting for a transplant can be tough, it’s okay to ask for help. Everyone deserves to feel supported and live meaningfully, even during this challenging time.

References:

• American Transplant Foundation: www.americantransplantfoundation.org
• National Suicide Prevention Lifeline: 988lifeline.org
• Crisis Text Line: www.crisistextline.org
• Gift of Life Howie’s House: www.giftoflifehowieshouse.org