Howie's House Blog
This week, Gift of Life Howie’s House volunteer Howard Pritchard will be heading to the Transplant Games of America in Cleveland, OH. As a proud member of Gift of Life Donor Program’s Team Philadelphia, he will be competing in the 5K walk and run, cycling, and the cornhole bean bag throw event. Pritchard is a Transplant Games veteran; he has competed 7 times, even winning gold medals!
Pritchard was a living donor to his younger brother, having donated one of his kidneys to give his brother a second chance at life. “He didn’t want me to do it, but I did it anyway,” Howard Pritchard told the Daily Times in 2012. “It gave him an extra 10 years and he was a great person.”
As Pritchard stated, “one of the main reasons I do participate in the Transplant Games is to honor my brother.” Pritchard’s brother was also involved in the Transplant Games: bowling in 1998 and 2000 and later, alongside his brother, in the 5K run. Prichard’s brother sadly passed away from juvenile diabetes in 2001.
This year, Pritchard will once again honor his brother while going for the gold! And he will be accompanied by five other athletes from his hometown area, Delaware County.
Congratulations and good luck Howard!
Gift of Life Howie’s House is proud to spotlight members of the Legacy Society who have made planned gifts to support the future of the House.
“It takes a lot to keep the Gift of Life Howie’s House running, and to be able to provide rooms for people who otherwise wouldn’t be able to have a place to stay. I think it’s very important that this continue.” – Jean Jones
Jean and Sam Jones are passionate supporters of the Gift of Life Howie’s House.
Jean Jones vividly remembers what it was like spending an entire summer living in a hotel in Washington, D.C. after her son’s organ transplant in 2006, because there was no transplant house. “There were a lot of people that we got to know – some from Philadelphia – who really didn’t have any place to stay,” says Jean, who is from New Jersey. “It was very difficult for them.”
After her son’s successful transplant, Jean learned about our plans for the Howie’s House and the rest, as they say, is history. “When I heard about the Gift of Life Howie’s House, I thought, ‘Oh my gosh, that is just wonderful.’ So I got involved and then I signed up to be a volunteer.” In addition to Jean’s role as a volunteer, she and her husband, Sam, are generous supporters and great friends of the House. They also recently joined our Legacy Society.
Having experienced first-hand the plight of transplant families, Jean is especially interested in helping the Gift of Life Howie’s House fill the need for affordable lodging and services. “It is just wonderful that families are able to stay a night, or as many nights as they need to, have transportation to the hospital, have meals, and help from a social worker – anything they need. That’s so much better than just being on your own in a big city and trying to find a place to stay – and having no one to talk to or help you.” Jean explains that making provisions to include the House in their will is their way of continuing to help long after they are gone. “When you put it in your will, you know it’s going to go where you want it to go, to what you are passionate about.”
Jean and Sam support a number of charitable organizations, especially those that directly serve people. We are very grateful that the Gift of Life Howie’s House is among them. “It takes a lot to keep the House running, and to be able to provide rooms for people who otherwise wouldn’t be able to have a place to stay. I think it’s very important that this continue. The more I can help them to do that, the better.”
Gift of Life Howie’s House invites you to join Sam and Jean Jones in supporting the future of the House by becoming a member the Legacy Society.
Joining the Legacy Society is easy. Simply include the language below in your will directing a charitable gift to the Gift of Life Howie’s House and then let the House know about it. Such a bequest can take many forms including cash, stocks, or other gifts of value. A future gift made through a bequest may provide tax advantages that benefit you, your estate and your beneficiaries.
When you become a Legacy Society member, your gift will be acknowledged right away and you will be enrolled in various recognition activities, including an invitation to the yearly President’s Appreciation Reception. Your name will also be published in the Gift of Life Howie’s House’s quarterly newsletter and on its website and, for members who make bequests of $10,000 or more, your name will also be added to a special Legacy Society Wall being built in the Howie’s House living room.
When you make a bequest to the Gift of Life Howie’s House, you will help to ensure a “home away from home” for the transplant families who will need support for years to come. And, you will have the satisfaction of knowing that your deeply held values will live on through the loving care the House provides.
Sample language for making a bequest: “I give, devise, and bequeath to Gift of Life Howie’s House, a non-profit 501(c)(3) charitable organization located at 401 Callowhill Street, Philadelphia, PA 19123, EIN 26-0585694, or its successor-in-interest, [insert dollar amount or percentage] for its unrestricted use and purposes.”
Click here for more information about the Howie’s House and planned giving options and to download a Legacy Society Membership form.
As with any tax-deductible gift, you should consult with your tax advisor to determine the degree to which your gift may result in tax advantages to you, your estate, and your beneficiaries.
By: Lucia Cucinotta
Director of Community, Anjali Power Yoga
Take a deep breath in and a deep breath out and I am sure you will already feel a sense of ease. The key of meditation is breath. Allowing yourself the opportunity to breathe helps relax the body, decrease tensions, and help the mind process. Meditation can be an easy, affordable and effective way to reduce the stress and tension caused from being a transplant caregiver. If you simply take 3 to 5 minutes of your day on the below meditation exercise, you can make meditation a healthy life habit.
Find a seat
Sit on the floor, sit on a chair, you can even stand. Finding your seat is finding a place where you can take a few minutes to clear your mind. If you are lucky to find a quiet space, go there. If not, see if you can face a wall or blank space to avoid visual distractions. You can find your seat anywhere, even in your car, the point is to find a space where you can be. If you have a timer on your phone, set it now for 3 to 5 minutes.
Get grounded
If you are sitting, press your sit bones into the ground, lengthen your spine, and bring your shoulders up and back. You want to feel grounded to the earth so you can press down to lengthen and straighten your spine. Engaging your lower core (abs) will help keep your spine long and strait. You can fold your legs or keep them long in front of you. Place your hands on your knees or the tops of your thighs, palms facing up if you need to feel lifted and palms facing down if you need to feel grounded.
Close your eyes
To focus inward for a few moments you must shut your mind from what is going on outside of you. As you close your eyes you will feel your seat shift as your body gets used to this new focus. Avoid squeezing your eyes shut. Close your eyes with ease and begin to relax your face.
Focus on your breath
Begin to take deep breaths by inhaling through your nose and exhaling through your nose. Start with a 3-count inhale and 3-count exhale until you build to a 5-count inhale and a 5-count exhale (ex: breathe in deeply and count to 3 in your head, breathe out slowly and count to 3 in your head). When you reach the 5-count inhale and 5-count exhale, imagine the sounds of your breath are waves of the ocean. Touch the ground or wiggle your toes to feel the sand. Smell the salt air. Perhaps even begin to hear the seagulls. Keep your eyes closed, focus on the center of your forehead, and keep your 5 count inhale and 5 count exhale. Envision the sun as it rises over the horizon in front of you. Allow the colors to paint the sky of your mind. When the sunrise reaches its most radiant point (or when the timer goes off), open your eyes. Sit there for a moment and allow yourself to feel the new sense of ease that has washed over your body and mind.
Make it a habit
You can do this simple meditation exercise for 3 to 5 minutes or more. Remember, some say it only takes 18 days to form a habit. If you can take 3 to 5 minutes out of your day, every day, for 18 days, you can make meditation a healthy life habit!
For more resources and ideas on reducing stress, please visit our Caregiver Lifeline Program webpage at www.GiftofLifeFamilyHouse.org.
It was 33 years ago when Cindi and Russell Westendorf met at the Hospital of the University of Pennsylvania (HUP), purely by coincidence. Now, happily married with 3 grown children, they found themselves back at the same hospital, but this time for Russell to receive a life-saving lung transplant.
Prior to Russell and Cindi meeting, Cindi was a graduate student in Philadelphia studying counseling and creative arts therapy. Russell had gotten into a very serious motorcycle accident and was transferred to HUP, a hospital close by where Cindi was studying, to receive bone grafts. He stayed there for many months during his recovery. Cindi’s family, who knew Russell’s family, recommended she stop by his hospital room for a visit as she was already in the area – and they have been together ever since.
“I think one of my biggest reliefs was finding the Gift of Life Howie’s House, to be honest with you. That is when my heart felt better because I knew my wife was going to be okay.” — Russell Westendorf
After they got married, they settled in Colts Neck, NJ and had three sons. Russell worked as a stone and tile setter. A union man at heart, Russell loved his job, especially the fact that his hours allowed him to be home with his kids and his wife. However, it was very tough on his physical health and Russell developed a serious lung disease. Surrounded constantly by dust, insulation, and other hazardous materials, “it physically beat me up. Lung disease was part of what I did. It took some getting used to, but slowly my health got worse until suddenly I’m using 17 percent of my lung capacity, and started to have to use the oxygen.”
She is My Rock
Because of his illness, Russell was listed for a lung transplant in 2014. All too familiar with caregiving and support, Cindi, an art and trauma therapist, has been right by his side throughout his entire transplant journey. Russell could not be more grateful for their partnership, “She is my rock and probably the most giving person I’ve ever met in my life.”
After two years on the transplant list, the couple was getting into bed one night about a week before Christmas when they received the call that donor lungs were available. They rushed to Philadelphia, over 70 miles from their home at 2:30 in the morning and, upon arrival, Russell went right into surgery. He awoke on December 19th with the gift of life – a new pair of working lungs – thanks to someone’s selfless decision to say yes to donation.
After the transplant surgery, Cindi was able to stay at Gift of Life Howie’s House while her husband was in recovery. Russell said, “I think one of my biggest reliefs was finding the Howie’s House, to be honest with you. That is when my heartfelt better because I knew my wife was going to be okay.”
On Christmas morning, a few days after the surgery, the doctors moved Russell back into the ICU due to a complication. Cindi, who was staying at the House, got a call from the hospital explaining the situation. “I got up, so startled. I didn’t even think about it being Christmas but I woke up, got dressed, got myself together and opened the door and there were all these gifts [from the staff]. It was really special; it’s just a little thing like that that made me feel like we were in the right place at the right time.”
Recovery at Gift of Life Howie’s House
Russell recovered from the complication and was released from the hospital a few weeks later. He was then transferred to the Gift of Life Howie’s House to continue his recovery. After hearing so many wonderful things about the House from his wife, he had high expectations upon arriving: “When I got here, I was totally blown away. Everybody here is just wonderful, very supportive. The thoughtfulness that went into planning this place and the relief of having meals is unbelievable. And I love the fact that you can sit around and share experiences with other transplant patients.”
Though the couple remarked on many wonderful aspects of the House, Russell’s favorite, in particular, was the Home Cook Heroes program. This volunteer-based program invites people from all over the community to come to the House to prepare a home-cooked meal for Gift of Life Howie’s House guests. Russell especially enjoyed the variety of nutritious meals, “It’s all been fabulous—the whole concept that people do this for us is so nice. It has really helped me open up my pallet and try different things that I normally wouldn’t,” said Russell. “I wouldn’t even eat salad at home and now I am trying new things, like guacamole. It’s given me a new lease on life – healthy eating is important for my recovery.”
Russell and Cindi are thrilled to have a place where their sons can come for visits, a place where they can meet new families and volunteers and continue trying new foods. But above all, they are relieved to have a place where they can relax and work on getting Russell’s physical health back to normal. Russell says, now more than ever, they will both continue to live by their personal motto: “Be Positive—that’s my blood type.”
By Carlene N. Bowen, RD, LDN, CNSC
Malnutrition prior to transplant is common amongst most end organ diseases. Prior to transplant, most patients have to follow some dietary restrictions due to the limitation of their organs. Some patients hope that having a transplant will elevate some of those dietary restrictions and bring improved quality of life. Contrary to some medical advice, a transplant patient cannot “eat whatever they want”.
The immunosuppressant medication that is taken to protect the new organ may cause some nutrition-related complications, which may require new or additional dietary restrictions. Some of these complications includes, but not limited to diabetes or NODAT (new onset of diabetes after transplant), excessive weight gain, hypertension (high blood pressure) and hyperlipidemia.
The cause of NODAT is multifactorial, with can include, but not limited to factors such as the post-transplant medication regimen, age, weight status and family history. The onset of NODAT can be delayed or prevented by practicing a few healthy habits. Monitoring your blood glucose level is critical step in knowing your risk for DM; this should be done with each post-transplant doctor visit. Your doctor can check a hemoglobin A1C level; this test gives a three month average of your blood sugar. A number greater than or equal to 6.5% indicates a diagnosis of NODAT.
Take control of your diet by limiting foods that contain added sugars such as sweets, desserts, and sugar-sweetened beverages. Instead, choose foods that contain whole grains and that are lower in calories and fat. By making these healthy food choices and exercising on a regular basis, you can maintain a healthy weight and delay diabetes.
Excessive weight gain is common in the transplant population; this can be caused when dietary restrictions are gone thus liberalizing the diets. Some medication can cause an increase in appetite, which leads to overeating of not so healthy foods. Chose foods that are fresh and minimally processed, which include whole grains, lean meats, low-fat dairy products, fruits, and vegetables. Ongoing nutrition education and regular physical activity are two keep components in preventing excessive weight gain. Weight management programs such as Weight Watchers can help the patient to lose and maintain a healthy weight.
Hypertension is a common side effect of immunosuppressant medications. A diet that is low to moderate in sodium (2000-3000 milligrams/day), along with weight management and exercise may help in the management of high blood pressure. Medication maybe required if the blood pressure remains elevated, despite a having a healthy lifestyle. Choose foods that are made from scratch and limit use of pre-made or boxed foods. If you use canned foods, chose those that are labeled as “no added salt” or “low sodium”.
Hyperlipidemia is also a common side effect of some of the immunosuppressant medications that are prescribed. Limiting fats in your diet can help to lower your risk of heart disease. Choose lean meats, poultry, and fish or beans, peas, nuts, or seeds. Cook using low-fat methods like baking, broiling, or steaming. Reduce the amount of fat and oil you use, as well as, using healthier oils, like canola or olive oil.
In addition to following a healthy diet, it is important for a post-transplant patient to take precaution to avoid foodborne illness, by selecting, cooking and storing your food. Some of the basic rules include avoiding undercooked meats, poultry, eggs, raw fish, such as sushi or sashimi, and raw milk or unpasteurized dairy products. Avoid herbal supplements and any over-the-counter medications that were not prescribed by your transplant team.
The registered dietitian (RD) at your transplant program is a great resource for food safety and nutrition information after transplant. If your program doesn’t have an RD, you can find on at the Academy of Nutrition and Dietetics (AND) website www.eatright.org under “Find an Expert”.
About the Author
Carlene N Bowen, RD, LDN, CNSC is registered dietitian for the Jefferson Transplant Institute (JTI) and have over fifteen years of experience in the field of nutrition and dietetics. She has been in this current position for the past six years, where she provides nutrition education for the transplant patients in the heart, kidney, liver, and pancreas program. She also works with any potential kidney and liver donors. She is also a preceptor for nutrition students from various internship programs. Carlene enjoys volunteering with the various organizations, such as The American Heart Association- (AHA) Passion Committee, the American Liver Foundation ( ALF) and the National Kidney Foundation (NKF). She is a member of the Associate Medical Advisory Committee (AMAC) of ALF Mid Atlantic Division and the Academy of Nutrition and Dietetics.
Resources: “Nutrition Following a kidney transplant” Renal Dietitian Practice Group 2015
For more transplant support, please check out the Caregiver LifeLine Program and its resources here!
March is National Social Work Month!
In celebration, the Howie’s House would like to thank and recognize some of the local social workers who help donor families and transplant patients around Gift of Life’s region! Every Saturday, check back and read about a new social worker in the local community. Also be sure to be on the lookout for their transplant caregiver tips throughout the month via the Howie’s House social media!
LARA MORETTI has been a social worker at Gift of Life Donor Program since 2003. She’s worked in a variety of social work fields, from working with adolescents, to hospital/ transplant social work, to employment assistance, and even spent some time working for an internet advertising company in the 90’s! She’s no stranger to transplant social work because her first field placement in graduate school was with heart failure/heart transplant patients!
Why did you decide to go into Social Work?
I knew I wanted to go into some kind of counseling and helping profession (my mother was a guidance counselor) but I knew I wasn’t interested in becoming a full time therapist. Social work seemed like a good way to combine my helping and therapeutic skills while using other skills in a variety of setting. I also was always interested in the medical field and started as a hospital social worker. The job at Gift of Life came at a time when I was looking to try something different in social work.
What is your favorite aspect of your job?
I love when a donor family tells me that talking to me has helped them. So much of what I do is grief education for these families. They may have experienced loss before but this sudden, unexpected loss has them reacting in such a different way, that often they feel like they aren’t grieving normally. Most of them are experiencing normal grief; they just don’t know it. Being able to educate them and give them permission to grieve the way they are grieving is hugely rewarding.
What is your favorite way to relieve stress?
Losing myself in a good book or “This American Life” podcasts.
“The Howie’s House is a very special place for everyone. Not just the guests, but the volunteers too.”
Most donor families, while they may correspond with their loved one’s recipients, don’t often get the opportunity to meet the recipients in person. When a donor family member does have the opportunity to meet a transplant recipient, even if the gift did not come from their own loved one, these interactions can be very meaningful and of much comfort to them. This is the feeling members of Hearts of Gold get when they come to the Howie’s House. Hearts of Gold is a donor family support volunteer group run through Gift of Life Donor Program, and its members meet regularly at Gift of Life Howie’s House to participate in the Home Cook Heroes program, where they can interact with transplant recipients and families.
Diane Milbourne, Hearts of Gold team leader, explains, “Being at the Howie’s House gives us an opportunity to talk to transplant recipients and those who are waiting for a life-saving transplant. It is probably the first time that potential transplant recipients and their families come into direct contact with donor families. It is important for both of these groups to interact, to hear each other’s stories. We are happy to share the story of our loved one and reassure people that the gifts they are receiving are done so because our loved ones wanted to give the greatest gift of all, the gift of life.”
Having served their first meal just a few months after the Howie’s House opened in July 2011, Hearts of Gold has since returned three times every year to prepare dinner or brunch for transplant families. “We remember when we first started cooking, their weren’t too many guests in the House, now there is always a full House. The Howie’s House is truly a blessing for each family who is coming to Philadelphia for their medical needs.”
Hearts of Gold aims to serve meals that bring comfort to the guests staying at the House. Because all of the members of this team have had loved ones in the hospital, they relate to the stress and anxiety that caregivers can feel on a daily basis. The team explains, “At that most stressful time of our lives, we were not interested in eating, but knew it was necessary. We know it is the same for the guests staying at the Howie’s House after a long day at the hospital. Comfort foods are just one small way for our group to help them.”
From chicken pot pies to casseroles and soup, the group always tries to make a different comfort food. However, nothing can top the popularity of their trademark meal, “Breakfast for Dinner.” Serving the guests eggs, bacon, sausage and home fries, Hearts of Gold ties it all together by making their special heart-shaped pancakes!
The group volunteers at the Howie’s House to remember, honor and celebrate their loved ones. The members find healing through the Home Cook Heroes program and other opportunities with Gift of Life Donor Program. “The Gift of Life organization has been there for each donor family at our worst possible time. Physical activities, like cooking together as a group, releases the endorphins in our brains, which makes us look at life in a more positive way,” explains one of the Hearts of Gold members.
Interested in getting experiencing the benefits of the Home Cook Heroes program for yourself? Gather your friends, family or coworkers together and participate in this heart-warming program which provides an essential means of healthy support for transplant families staying at the Howie’s House. Dinners are served every night of the week, along with brunch on the weekends. These meals afford our tired guests with the opportunity to decompress, share their experiences and find solace in a communal setting. Volunteers donate their time and the food, and get to see the impact of their efforts on the families they serve, all the while learning the importance of supporting organ donation in their own lives. Come try it out! Click here to learn more about the Home Cook Heroes Program.
by: Kirsten Diegel
- Take a Lap – Walk around the whole cafeteria to see the selection. Cafeterias may change the menu daily, and sometimes they have seasonal specials. As you walk around, take note of which options fit your nutrition goals. For instance, are you trying to lose, gain, or maintain your weight? What did your dietitian recommend?
- Food for Thought – Although the staff works hard to prepare foods that are safe to eat, transplant patients need to be especially careful. This is one reason why dietitians spend time educating transplant patients before discharge. Examples of foods to avoid include deli meats and cheeses, salad bars, raw nuts and sprouts, etc. Refer to FDA’s list about food safety as a refresher. If needed, contact your dietitian for an additional copy of Food Safety for Transplant Patients.
- Balance Your Plate – Imagine your plate is divided into 4 sections; fruit, vegetable, protein, and whole grains. Aim to have a plate that has food in each section. Of course, this can be a challenge. At a minimum, try to pair a protein (chicken, turkey, fish, beef, peanut butter, milk, etc.) with at least one other food group (fruit, vegetable, or grain). Having a serving of protein will help keep you feeling full!
- Sip on This – Beverages can boost your calorie intake and weight, which may be a benefit for some but not so great for others. If you are trying to gain weight, high calorie beverages/fluids, such as whole milk, chocolate milk, fruit/vegetable combination juices, protein shakes are options to consider. On the other hand, if your goal is to lose or maintain your weight, water, unsweetened beverages, and low-fat or skim milk is your best bet. Remember: Canned beverages (ex. soda) are not recommended for transplant patients for food safety purposes.
- Keen on Clean – Before eating or drinking anything that you have purchased, take a second to use hand sanitizer to clean your hands, wipe your utensils with a napkin, and wash your fruit. That apple may have been washed in the kitchen, but who knows how many people picked it up before you selected it. During your meal, place your utensil on a napkin or on your plate rather than setting it directly on the table between bites.
About Kristen:
Kirsten Diegel graduated from University of Delaware and completed her Dietetic Internship through ARAMARK in Philadelphia. She is currently pursuing her Master of Science in Health Promotion at the University of Delaware while working as a Clinical Dietitian at Temple University Hospital. Kirsten has worked within the hospital system for 4 years and has been a part of the Lung Transplant Program, one of the oldest and most experienced centers in the region, for the last 3 years. Kirsten is an active runner who is working towards running the New York Marathon in 2017. Kirsten enjoys eating soy yogurt with fruit and almonds/walnuts as a snack to help fuel her workouts, although she will never say no to anything with chocolate.
In today’s age of technology, a simple Facebook search can reunite long-lost friends, but it can also lead to the greatest gift of life—an organ transplant. Spending their summers growing up together in South Amboy, NJ, Gail Boscian and Mary Casey-Griffin grew incredibly close. However, after their families moved away from one another, they lost touch for about 30 years until they were reunited through social media.
“I have plans to live. We had many good times and they are not over yet—they are just beginning. This is the next chapter of our lives.” – Mary Casey-Griffin
Mary, born with polycystic kidneys, was officially diagnosed with Kidney Cancer around age 45. At that point her health rapidly declined. Having worked as an art teacher for 25 years, she tried to continue her work in administration but her health impeded her career. On peritoneal dialysis for 10 hours a day, “I was tethered to my bed –it was really getting me depressed.” In 2015, she was diagnosed with kidney cancer and needed a nephrectomy—removing both of her kidneys this past September. Her husband, son and daughter-in-law all wanted to be her living donor but were unfortunately unable to.
Meanwhile in Ohio, Gail had recently moved back to be with her family and future husband. Having just received foot surgery in March of 2015, Gail was confined to the couch for eight weeks during recovery. After playing around on social media out of sheer boredom, she remembered her long lost friend, Mary, and decided to do a search for her. After plugging her name in on Facebook, there she was! They connected and quickly became friends again.
Gail explains, “We started talking on the phone and I found out about her kidney and I said, ‘Oh, no, no, no, no—you can’t live like that!’” So without hesitation, Gail offered to be tested to see if she was a match to be Mary’s living kidney donor.
Just five months later, in August, she discovered she was an exact match for Mary. Out to lunch with two friends on a random afternoon, Mary received a call from Gail: “I just heard from our transplant center and it’s a go!”
Mary recalls, “I couldn’t even talk… I was crying and I couldn’t believe she would do something so selfless.”
Gail has struggled with the attention this selfless donation has ignited. She explains, “I don’t like people saying how wonderful I am for wanting to help my friend. I guess it’s amazing to me that more people don’t donate. I love her, she’s become like a sister to me.”
After endless phone conversations, these two women finally had the opportunity to reconnect in person before the scheduled surgery as guests of Gift of Life Howie’s House.
Upon arrival they were both immediately impressed with the Howie’s House and all the services provided to transplant families. Gail’s impression of the facility was simple: “I Love it,” she says, “there is just so much to do here!” Mary calls the Howie’s House “a godsend; I cannot imagine how important the Howie’s House is to the people that stay here. The Library alone is just amazing – it’s worth every stay here!”
Sitting around a table in the Howie’s House dining room eating Jell-O and beef broth, they were anxious to try all the delicious food prepared by the Home Cook Hero volunteers. Not being able to eat before surgery, they were dreaming of hoarding the cake from the night’s volunteers to save for a post-transplant treat.
We are happy to say that Mary and Gail’s surgeries went very well and both are recovering here at the Howie’s House. And now, looking to the future, the opportunities are endless. Mary says “I see myself living. I want to go to Ireland, New Orleans, Las Vegas, Ohio—to visit Gail—to take a few art classes. I have plans to live. We had many good times and they are not over yet—they are just beginning. This is the next chapter of our lives—we took a brief hiatus and now we are back!”
At the Howie’s House love is manifested in many ways – consider joining our mission to support and show love for transplant patients and their families. Learn how to get involved or show your support through a financial gift visit, www.GiftofLifeFamilyHouse.org.
“To be able to provide home-cooked meals and improve someone’s day is a great thing to be a part of.” – Jenn Fisher
Jenn Fisher and her family were delighted to start volunteering at the Howie’s House in the new year. Very different from all of their other volunteering endeavors, volunteering at the Howie’s House has a personal meaning to Jenn and her family. Both Jenn and her husband, Trevin, are transplant recipients whose love story began at the World Transplant Games.
Trevin, a pancreas recipient, and Jenn, a heart recipient, both competed at the 2013 World Transplant Games in Durban, South Africa. They met on the first day of the games and the rest, as they say, is history. As Jenn explains, “Our transplant stories are very similar and we had an instant bond. The day we got back from South Africa, Trevin booked a ticket to Philadelphia to come visit. And we’ve been together ever since.”
Although the Howie’s House didn’t exist at the time of Jenn or Trevin’s transplant, they both very personally understand the need for such a resource. As Jenn states, “I think the Howie’s House is an amazing support for transplant recipients and their families. We are so appreciative of everything that Gift of Life has done to support us; and we would like to give back in any way possible.”
Understanding all too well the overwhelming feelings associated with the transplant process, Jenn and Trevin wanted use their love of cooking to alleviate some of those difficult feelings for the Howie’s House guests. “I think that people have many emotional connections to food and to be able to provide home-cooked meals and improve someone’s day is a great thing to be a part of.”
Jenn also values how being a Home Cook Hero allows her to interact first-hand with Howie’s House guests. She hopes that her and her husband’s positive transplant experiences and success stories can be of support and motivation for anyone going through their own transplant journey. Speaking with the families, whether patients or caregivers, is the most memorable and meaningful part for Jenn. Inspirational does not begin to describe the guests at the Howie’s House, “It’s amazing how much people can go through and still be smiling and have a positive attitude.”
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