Howie's House Blog

“There are a lot of misconceptions in the African American community about organ donation,” Keith Chalmers reflects. “People know very little about organ transplantation and I want to change that.”

Keith’s passion for organ donation awareness started with his own transplant journey about 7 years ago when he visited his family doctor for what he thought was just a bad cough. However, the cough didn’t get better. Over the course of two years, Keith was diagnosed with pneumonia, emphysema, and finally, COPD. Eventually, Keith’s journey led him to be placed on the organ waiting list.

Keith is very thankful to his pharmacist who first introduced him to the Gift of Life Howie’s House, where he stayed for four days in 2013 for testing at the Hospital of the University of Pennsylvania. He was listed for a lung transplant. Keith received his precious gift of life from a selfless donor in March of 2015. Now, he stays at the  House every 3 months for follow-up appointments.

“Without the Gift of Life Howie’s House, I wouldn’t have had a place to stay. I don’t think I could ever repay the folks there,” he says. “Everyone is so polite. If I didn’t live so far away, I’d be there volunteering every day. I’d help drive the van and clean up the house. Whatever I could do, I’d do.” 

Keith is able, however, to volunteer every year during Gift of Life Donor Program’s Donor Dash.

Keith also spends a lot of time educating people about organ donation, specifically in minority neighborhoods. “Knowledge of the entire process is less common in these areas,” he says. “Not many African Americans know what organ donation really means or how it works. It isn’t advocated in the media enough.”

He keeps literature about organ donation in the back of his car, stands on line at the supermarket and asks people if they are donors, hangs banners outside his home, and even sets up a Q&A table outside his house in the summer to engage people walking by. Last Christmas, he helped 50 people register as donors.

He is extremely grateful for his precious gift. “Somebody saved my life,” he says. “Because of that, I’ll be out there, educating one person at a time.”

In 2004, Diana Ortiz battled a virus that left her with an enlarged heart. In 2011, her heart began to fail and she started spending several days each month in the hospital. In 2016, she was given six months to live. Ortiz received a left ventricular assist device, an LVAD, to help her heart pump blood throughout her body. She went back home to Allentown, PA, with her partner, Chris Bolden, and her doctor placed her on the transplant list in September of 2017. Shortly thereafter, Ortiz received her life-saving heart transplant and a miraculous second chance at life thanks to a charitable act by a donor family.

Bolden and Ortiz made the three hour trip to Philadelphia where Ortiz underwent surgery to receive her precious gift. While the surgery was successful, her new heart was weak at first. Doctors placed her back on ECMO for the first month and she fell ill to pneumonia. Throughout the ordeal, Bolden rarely left her side. “I only went home twice,” Bolden said. “I visited the hospital every day. Halloween, Thanksgiving, Christmas. On the days I did go home, my first stop of the day was always the hospital.”

Bolden stayed at the Gift of Life Howie’s House for four months while Ortiz recovered. He had a place to sleep, a place to eat, and people to talk to while he supported his loved one. The Gift of Life Howie’s House provided shuttle service for him and other guests to the hospitals where their family members were being treated in Philadelphia. “The shuttle is a lifesaver for people,” Bolden said. “Drivers drop you right in front of the hospital entrance and people on the shuttle have either been through or are going through the same things as you. Drivers are even willing to point out historical landmarks in the city.”

Our House volunteers drive the shuttle which runs several times a day, assisting guests who do not have cars, don’t feel comfortable navigating the city, and/or can’t afford to pay for gas and parking. “Without the shuttle, it would’ve been more of a struggle,” Bolden said. “Parking my own vehicle at the hospital would have cost almost $100 a week.” This past year, more than 4,600 guests climbed aboard our six-passenger minivan. Unfortunately, there were many trips where guests were turned away because the van was full. The minivan also has limited cargo space for stowing oxygen tanks and wheelchairs needed by transplant patients. Recently, we rented an 11-passenger vehicle to better provide for our guests’ comfort and wellbeing. “The new shuttle is roomier. There’s an overhead compartment and more room to get in,” Bolden said.

As part of our spring campaign, we hope to raise $50,000 to put towards a new, 11-passenger shuttle with a bus-style folding door, low steps, a center aisle, and a raised roof to make trips easier for both drivers and riders.

“Without the House, [Chris] would either be living at the hospital with me, or couldn’t come back and forth,” Ortiz said. “I never worried because I knew he had a place to stay.”

We hope you consider supporting our campaign for a new shuttle. Your donation will help guests like Chris Bolden travel back and forth to visit their loved ones and leave them with one less thing to worry about. Click below to make a donation:

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Jim and his wife, Kim, began their organ transplant journey in October 2014 due to complications with his liver function. He initially declined treatment because he wasn’t feeling sick and wanted to continue working towards his retirement. “There was no indication how bad it was,” Jim says. However, as time went on, Jim’s condition worsened, so much so that he was near death and his doctor recommended he turn to Hospice care. Neither Jim nor Kim accepted this diagnosis, so he began treatment. Towards the end his treatment regimen, his doctor informed him that he would need a liver transplant in order to sustain his life. The doctor referred him to a transplant hospital in Philadelphia where he would be tested and listed for a liver. For five months, Jim and his wife traveled back and forth from Virginia to Philadelphia for appointments.

Kim and Jim Prince in the Howie's House living room.
Kim and Jim Prince in the Howie’s House living room.

 

During this time, the Princes’ planned a trip to visit Kim’s brother who was ill and receiving treatment in a hospital in Pittsburg. They planned to meet up with family friends Peggy and John during the trip, but when they arrived, they learned that John had suffered from a blood clot and was brought into surgery. Sadly, John did not survive and was pronounced brain dead later that afternoon. This was a terrible tragedy for their family, but John’s wife Peggy bravely decided to make the selfless decision to donate her husband’s organs—and she wanted Jim to receive John’s liver.

Shortly thereafter, Jim’s transplant team in Philadelphia flew to Pittsburg overnight to bring the liver back.  After an incredibly unique chain of events and a brave family’s decision, Jim’s life-saving liver transplant surgery was successfully completed.

His story became a hospital favorite across different departments and floors. He stayed in the hospital for almost 12 days and then joined his wife Kim at the Howie’s House for the first month of his recovery. He attributes his strength during recovery to his faith and the Howie’s House’s warm, friendly environment. “Everybody’s so supportive [at the Howie’s House],” Jim says. “This is our house, and our family, too.”

“You never know the importance of how something we take for granted can change a life forever,” Kim reflects. “If you have a life, you can save a life. You never want to lose a loved one, and if there’s someone you can help, you should be willing to help someone else keep a loved one.”

For several years now, my family and friends have come together at Gift of Life Howie’s House to cook and serve guests a special, home-cooked meal …

We choose to be Home Cook Heroes because we know what these families are going through. And we do it because we want to honor our own hero, our son Gavin, on his birthday.

Gavin had a febrile seizure that led to cardiac arrest in April of 2013. He was 5 1/2 years old. His kidneys were the only viable organs able to be donated — and both of them went to a man in his 40s.

Helping others is, to me, one of the best ways to honor Gavin. – Kate Leong

It meant so much to us to donate Gavin’s kidneys at the end of his life, and we feel joy over and over as we help families staying at the Howie’s House. They come from all over the world, and the Howie’s House serves as their “home away from home” — and so much more.

 

-Kate Leong

 

 

 

Talia Giordano, Howie’s House Social Worker with Sofia and Stefany, past Howie’s House guests

Through my job as an in-house social worker, I offer support — including individual and group counseling — to help families through the transplant process.

But over the last six-plus years, I have also wiped tears, given hugs, brought in therapy dogs, celebrated birthdays and graduations, thrown bridal showers, and so much more.

“It’s a privilege to stand with families who have come from across the state, or across the country, on their transplant journey.” — Talia Giordano

“It’s a privilege to stand with these families who have come from across the state, or across the country, on their transplant journey. And it’s a privilege to stand with other people who care. Will you make a gift during the Matching Challenge so every dollar can double to provide a home to patients and families in their hardest times?”  – Talia Giordano, MSW, LSW, Howie’s House Social Worker

To help families who rely on the Howie’s House during a most difficult and uncertain time in life, a generous friend has offered a $50,000 Matching Gift opportunity. Like you, this caring friend wants every transplant family to have access to an affordable place of rest, delicious home-cooked meals, and a warm and caring community of support. So every gift received prior to the December 31st deadline will be matched dollar for dollar, ensuring that more transplant families will experience a “home away from home” at the Howie’s House.

 

 

Yani with her mother, Merida

“I was nervous the first time I came through the doors of Gift of Life Howie’s House.

My mom had been so sick for so long … she was having dialysis three times a week. So I was really thanking God that she had the opportunity to receive a kidney transplant. I came to visit her for a week over the holidays, and I expected the Howie’s House to be a big, noisy, busy hospital. I was very surprised to find that it was a beautiful and quiet!

We had a really special Christmas together. We made a gingerbread house along with some of the other families who became friends to us, which was really nice because our other family was so far away.

The Howie’s House was a great blessing to us and to a lot of other families. Please make a gift now, while every dollar can go twice as far to help other patients and their families when they need it the most.” -Yani Barrow

To help families like Yani’s who rely on the Howie’s House during a most difficult and uncertain time in life, a generous friend has offered a $50,000 Matching Gift opportunity. Like you, this caring friend wants every transplant family to have access to an affordable place of rest, delicious home-cooked meals, and a warm and caring community of support. So every gift received prior to the December 31st deadline will be matched dollar for dollar, ensuring that more transplant families will experience a “home away from home” at the Howie’s House.

“Thank you so much for making my mother and me feel welcome at Gift of Life Howie’s House.

My life depends on a double lung transplant. We’re here at the Howie’s House waiting and hoping for “the call.””

I was just 33 when I got sick. In the years it took to get my diagnosis of Diffused Systemic Scleroderma with Interstitial Lung Disease, I had to quit my job and all my financial resources were depleted. The Howie’s House means my mother, who is my required caregiver, and I are not living in hotels and out of suitcases. It provides us with a home while away from home and a sense of stability during this very uncertain time.

It’s clean, quiet, comfortable, and beautiful. There are home-cooked meals every night, laundry facilities, a shuttle, and other families just like us who are waiting and hoping, too.

We are so grateful to people who support the Howie’s House “home” so we can focus on being ready when my call comes.

Will you help twice as many families like mine by making a gift during the Matching Challenge?” – Jennifer Herrmann

To help families like Jennifer’s who rely on the Howie’s House during a most difficult and uncertain time in life, a generous friend has offered a $50,000 Matching Gift opportunity. Like you, this caring friend wants every transplant family to have access to an affordable place of rest, delicious home-cooked meals, and a warm and caring community of support. So every gift received prior to the December 31st deadline will be matched dollar for dollar, ensuring that more transplant families will experience a “home away from home” at the Howie’s House.

 

When you make a bequest to the Howie’s House, you will help to ensure a “home away from home” for the transplant families who will need us for years to come. And you will have the satisfaction of knowing that your deeply held values will live on through the loving care we provide. You will also help to ensure that the Howie’s House is able to maintain their affordable fees and broad array of services for all who need support— now and in the future.

It is an easy and simple way that you can support the future of the Howie’s House and continue care for transplant patients and families. Bequests can be a percentage of the remainder of your estate or a specific dollar amount.

Sample language for making a bequest: “I give, devise, and bequeath to Gift of Life Howie’s House, a non-profit 501(c)(3) charitable organization located at 401 Callowhill Street, Philadelphia, Pennsylvania 19123, EIN 26-0585694, or its successor-in-interest, (insert dollar amount or percentage) for its unrestricted use and purposes.”

If you already have prepared a will, you can simply add a codicil amending it to include the Howie’s House.

Sam and Jean Jones, Legacy Society members

Already included the Howie’s House in your will? Let us know so we can celebrate with you now!

Enjoy recognition today as a Legacy Society member.
Supporters who notify us that they have made arrangements for planned gifts will be recognized as members of our prestigious Legacy Society. And for members who have made bequests of $10,000 or more will have their name and giving level added to the special Legacy Society Wall in the Howie’s House living room.

Visit www.GiftofLifeFamilyHouse.org for more information.

To discuss making a planned gift to Gift of Life Howie’s House or if you have already named us in your will, please contact Sara Cohen, Development Manager at 267-546-9812 or email scohen@giftoflifefamilyhouse.org.

Please consult your attorney, tax advisor or financial advisor before making a bequest or updating your estate plan.

Laura Giannotti, MSW, LSW, is a Howie’s House Social Worker

When you think about the winter season, you may think of the holidays or freshly fallen snow, which may bring you happiness and joy. You may also think of the treacherous weather, cold air, and shorter days, which can cause you to dread the winter season. It is not uncommon to feel sad, irritable, sluggish, or even have difficulty getting up in the morning. These feelings during the winter months are common and are often referred to as the “winter blues.” When you are feeling down, it can be easy to convince yourself that you cannot do things you enjoy – here are some tips that may help you beat the winter blues.

1. Maintain a Healthy Routine:

The winter is full of excuses for not staying active or maintaining a healthy lifestyle. It is important to keep doing everyday tasks that you normally do at other times of the year, including exercising and eating healthy. This consistency may help you focus on the task at hand, rather than the blues. You can stay active by stretching, doing yoga, dancing to your favorite song, or participating in your favorite winter sport. The smallest activity can help you get through even the toughest day.

2. Soak up the Sun:

The shorter days in the winter play a big role in feeling the winter blues. Many people get out of bed when it is still dark outside, go to work, and then come back home when it is dark again. The lack of sunlight can throw off your rhythm – both emotionally and physically. Try to go outside for at least a few minutes during the day, especially when the weather is mild. If you cannot get outside, try opening blinds, sitting by a window, or turning on overhead lights. This extra light may help you regain this rhythm.

3. Talk (or Think) It Through:

If the winter months make you feel blue, remember that you are not alone. Talk to your family and friends. Most likely, they have felt or are feeling the winter blues too. Share tips with each other that have helped. Another way to fight the winter blues is by writing down or thinking about at least three things you are thankful for each day. By focusing on the positive, you can help change your mood and outlook on the season.

4. Do Something You Enjoy:

It may be hard to become motivated when you are feeling blue. This can be especially hard in the winter when it is cold and dark outside. It is essential to still do things you enjoy! Challenge yourself to take up a new activity, socialize with friends and family, or make a list of winter activities you like to participate in, such as ice skating, playing in the snow, or simply reading a book while drinking hot chocolate. Try to do something fun every week, or even every day. It is important to look forward to something you like to do, instead of feeling like you are trapped inside.

If you are finding that the winter blues make it hard for you to function and those feelings continue for several days or weeks, consider reaching out to a counselor or therapist who may be able to help. For more information or support, you can also email one of the Caregiver Lifeline Program social workers.

Alicia Hoover-Murphy with her husband, Dave Murphy

Since we opened our doors more than six years ago, the Howie’s House has welcomed thousands of transplant patients and their caregivers to a real “home away from home.”

Among them is Alicia Hoover-Murphy, who found help and hope here first as a caregiver…and later as a transplant patient.

Alicia and her father had both been diagnosed with Idiopathic Pulmonary Fibrosis—a terminal lung disease for which a lung transplant is currently the only treatment option.

Two days before his 46th birthday, the call came … Alicia’s father would receive a new set of lungs. Like many transplant families, they were far from home as they waited and hoped—for months.

Your support of Gift of Life Howie’s House made sure they had a little less to worry about during those endless, scary months. At the end of every long, hard day spent at the hospital cheering him on, the family returned to a “home away from home” that included home-cooked meals; clean, comfortable rooms; heartfelt support from staff; and camaraderie with other transplant families.

Although her father’s transplant was a success, complications mounted in the months following the procedure, which ultimately claimed his life.

Over the next few years, Alicia grew sicker herself. It was a bittersweet day when she and her loved ones returned to Gift of Life Howie’s House so she, too, could undergo the many tests and consultations that would lead her to being listed for a transplant.

Alicia’s father, Edward Hoover

“When we were there for my father, we’d made friends with the staff and other families at the Howie’s House. They were all like a second family to us,” Alicia says. “It was so nice to be surrounded by people who understood what we were going through and to be able to educate one another about what to expect.”

When her call finally came, Alicia was more than ready for the lung transplant that would restore her to health, to her family, to life.

Alicia’s transplant was a success. She and her family are deeply thankful for the organ donor who gave her a second chance in life and for contributors like you who make the Howie’s House a warm, wonderful, and affordable place to stay during a most difficult time.

“Thank you to all of you for this amazing home. You make it possible for the Howie’s House to offer an environment that is safe to people going through extremely rough times in their lives,” Alicia says. “The Family House provided a place of shelter for my family and provided me with a whole other family that I love and care about as if they were my own relatives.”

Today, Alicia is healthy, happy, and busily raising three children … but she still has time to tell others how thankful she is that they support the Howie’s House, because those generous

 

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