Sovereign Insurance Group of Devon, PA, a longtime partner of Gift of Life, made a generous gift to support our mission of providing a “home away from home” to transplant patients and their families.

The group underwrote the South Porch on the front side of our building.

“I’m so thankful for the folks who had the vision to make Gift of Life Howie’s House a reality,” says Mark, an employee with Sovereign Insurance Group who understands how our mission impacts families. “My family and I were the beneficiaries of a similar vision when my mom was hospitalized for an extended period of time at West Virginia University Hospital and a number of us stayed at the Rosenbaum Howie’s House in Morgantown, WV. It’s such a blessing to have a warm and friendly place to stay when you’re otherwise totally stressed out and far from home.  Thanks for all you do!”

His co-worker, Eric, adds: “Having the Gift of Life Howie’s House available to the families and loved ones of patients is truly a blessing beyond words.  Sovereign Insurance Group is honored to help make “a home away from home” a reality for the transplant patient families who need the supportive and caring services you provide.  Our heartfelt thanks to all the staff and many volunteers who help make the Howie’s House a reality.”

We’d like to thank Sovereign Insurance Group for supporting our initiatives to give transplant families one less thing to worry about. Thanks to you, we can continue providing our services to create a comfortable, safe, and warm place for them to stay!

Corey Baker received his precious gift of life—a set of lungs—last September from as a charitable act from a kind, selfless donor. He and his parents, Jack and Sharon, traveled from upstate New York to Philadelphia when they found out his pulmonary hypertension treatment would require a transplant.

Jack and Sharon stayed at the Gift of Life Howie’s House while their son received treatment and during his recovery. While Corey was in the hospital, his parents would use our shuttle to travel back and forth from the hospital each day. “The reason we chose to stay at the Gift of Life Howie’s House was because of the shuttle service. Sharon doesn’t drive and I didn’t feel comfortable putting her in a taxi when I couldn’t travel with her,” Jack explains. “Because it was free, traveling was a lot easier for us.”

When Corey was in the hospital, his mother used it every day to visit him. “I usually took the 8:00 a.m. shuttle in the morning and took the last one back around 5:00 p.m.,” she says. After his transplant, Corey took the shuttle at least three times a week to travel back and forth from the House and his rehab appointments.

Corey, Jack, and Sharon all agree that talking to our volunteer shuttle drivers and other transplant families who they met on their rides brought them hope and comfort. “Many of the drivers and guests told us about their own transplant journeys. It was nice to hear about their experiences and what they learned,” Sharon says. Jack and Corey enjoyed how comfortable they felt learning about the unfamiliar city they were now living in. “We loved how all the drivers explained the city to you. We live four hours away, and we don’t know it well. Around the holidays, it was nice to look at the buildings lit up. We’re from the country—we never see sights like that,” Jack explains.

Once Corey was feeling better, he and Sharon would take walks to different places the shuttle drivers pointed out. “We’d remember places, and once he got well enough, Corey and I would walk to them,” Sharon says. “It was a great way to get out and enjoy the weather.”

Last year, our shuttle transported more than 4,600 guests between the Gift of Life Howie’s House and Philadelphia’s transplant hospitals. Unfortunately, there were many trips when guests were turned away because the shuttle was too full or could not accommodate their needs, such as space for oxygen tanks and wheelchairs. Sharon herself experienced some of these issues. “There were times I was turned away from the shuttle because it was full. It seemed really, really busy,” she says.

This spring, the Gift of Life Howie’s House hopes to raise $50,000 to purchase a new, 11-passenger shuttle to better accommodate our guests. Our new shuttle will have more seating for our guests, a larger cargo area, and it will be easier for patients and their families with equipment or physical disabilities to get on and off.

To accomplish this, we need your help.

Our shuttle service alleviated the financial stresses the transplant journey can bring for the Baker family. Without it, the Bakers say they would have had a difficult time getting to and from hospital visits and doctor’s appointments. “We would have to use Uber, which can cost anywhere between $10 and $20 depending on the time of day,” Jack says. “One time, we took an Uber in a snowstorm and it cost us $82.”

“I didn’t even have access to Uber when we first got to the House,” Sharon adds. “I still had a flip phone.”

The Bakers understand our need for a larger, more accessible vehicle.

“There’s always someone going in and out of the Gift of Life Howie’s House,” Sharon says. “A lot of times, some people were too late or too early for the shuttle. Sometimes, there weren’t enough drivers. We’d see Joe, the manager, filling in a lot.”

“Extra seating would help a lot of people,” Jack says. “The bigger shuttle will be able to fit 5 more people. That’s a big difference.”

A gift towards our campaign for a new shuttle will help families like the Bakers feel comfortable traveling in a new, unfamiliar city during the often stressful transplant journey and help guests like Corey continue to get the care they need.

Please consider making a donation below:

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“There are a lot of misconceptions in the African American community about organ donation,” Keith Chalmers reflects. “People know very little about organ transplantation and I want to change that.”

Keith’s passion for organ donation awareness started with his own transplant journey about 7 years ago when he visited his family doctor for what he thought was just a bad cough. However, the cough didn’t get better. Over the course of two years, Keith was diagnosed with pneumonia, emphysema, and finally, COPD. Eventually, Keith’s journey led him to be placed on the organ waiting list.

Keith is very thankful to his pharmacist who first introduced him to the Gift of Life Howie’s House, where he stayed for four days in 2013 for testing at the Hospital of the University of Pennsylvania. He was listed for a lung transplant. Keith received his precious gift of life from a selfless donor in March of 2015. Now, he stays at the  House every 3 months for follow-up appointments.

“Without the Gift of Life Howie’s House, I wouldn’t have had a place to stay. I don’t think I could ever repay the folks there,” he says. “Everyone is so polite. If I didn’t live so far away, I’d be there volunteering every day. I’d help drive the van and clean up the house. Whatever I could do, I’d do.” 

Keith is able, however, to volunteer every year during Gift of Life Donor Program’s Donor Dash.

Keith also spends a lot of time educating people about organ donation, specifically in minority neighborhoods. “Knowledge of the entire process is less common in these areas,” he says. “Not many African Americans know what organ donation really means or how it works. It isn’t advocated in the media enough.”

He keeps literature about organ donation in the back of his car, stands on line at the supermarket and asks people if they are donors, hangs banners outside his home, and even sets up a Q&A table outside his house in the summer to engage people walking by. Last Christmas, he helped 50 people register as donors.

He is extremely grateful for his precious gift. “Somebody saved my life,” he says. “Because of that, I’ll be out there, educating one person at a time.”

In 2004, Diana Ortiz battled a virus that left her with an enlarged heart. In 2011, her heart began to fail and she started spending several days each month in the hospital. In 2016, she was given six months to live. Ortiz received a left ventricular assist device, an LVAD, to help her heart pump blood throughout her body. She went back home to Allentown, PA, with her partner, Chris Bolden, and her doctor placed her on the transplant list in September of 2017. Shortly thereafter, Ortiz received her life-saving heart transplant and a miraculous second chance at life thanks to a charitable act by a donor family.

Bolden and Ortiz made the three hour trip to Philadelphia where Ortiz underwent surgery to receive her precious gift. While the surgery was successful, her new heart was weak at first. Doctors placed her back on ECMO for the first month and she fell ill to pneumonia. Throughout the ordeal, Bolden rarely left her side. “I only went home twice,” Bolden said. “I visited the hospital every day. Halloween, Thanksgiving, Christmas. On the days I did go home, my first stop of the day was always the hospital.”

Bolden stayed at the Gift of Life Howie’s House for four months while Ortiz recovered. He had a place to sleep, a place to eat, and people to talk to while he supported his loved one. The Gift of Life Howie’s House provided shuttle service for him and other guests to the hospitals where their family members were being treated in Philadelphia. “The shuttle is a lifesaver for people,” Bolden said. “Drivers drop you right in front of the hospital entrance and people on the shuttle have either been through or are going through the same things as you. Drivers are even willing to point out historical landmarks in the city.”

Our House volunteers drive the shuttle which runs several times a day, assisting guests who do not have cars, don’t feel comfortable navigating the city, and/or can’t afford to pay for gas and parking. “Without the shuttle, it would’ve been more of a struggle,” Bolden said. “Parking my own vehicle at the hospital would have cost almost $100 a week.” This past year, more than 4,600 guests climbed aboard our six-passenger minivan. Unfortunately, there were many trips where guests were turned away because the van was full. The minivan also has limited cargo space for stowing oxygen tanks and wheelchairs needed by transplant patients. Recently, we rented an 11-passenger vehicle to better provide for our guests’ comfort and wellbeing. “The new shuttle is roomier. There’s an overhead compartment and more room to get in,” Bolden said.

As part of our spring campaign, we hope to raise $50,000 to put towards a new, 11-passenger shuttle with a bus-style folding door, low steps, a center aisle, and a raised roof to make trips easier for both drivers and riders.

“Without the House, [Chris] would either be living at the hospital with me, or couldn’t come back and forth,” Ortiz said. “I never worried because I knew he had a place to stay.”

We hope you consider supporting our campaign for a new shuttle. Your donation will help guests like Chris Bolden travel back and forth to visit their loved ones and leave them with one less thing to worry about. Click below to make a donation:

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Jim and his wife, Kim, began their organ transplant journey in October 2014 due to complications with his liver function. He initially declined treatment because he wasn’t feeling sick and wanted to continue working towards his retirement. “There was no indication how bad it was,” Jim says. However, as time went on, Jim’s condition worsened, so much so that he was near death and his doctor recommended he turn to Hospice care. Neither Jim nor Kim accepted this diagnosis, so he began treatment. Towards the end his treatment regimen, his doctor informed him that he would need a liver transplant in order to sustain his life. The doctor referred him to a transplant hospital in Philadelphia where he would be tested and listed for a liver. For five months, Jim and his wife traveled back and forth from Virginia to Philadelphia for appointments.

Kim and Jim Prince in the Howie's House living room.
Kim and Jim Prince in the Howie’s House living room.

 

During this time, the Princes’ planned a trip to visit Kim’s brother who was ill and receiving treatment in a hospital in Pittsburg. They planned to meet up with family friends Peggy and John during the trip, but when they arrived, they learned that John had suffered from a blood clot and was brought into surgery. Sadly, John did not survive and was pronounced brain dead later that afternoon. This was a terrible tragedy for their family, but John’s wife Peggy bravely decided to make the selfless decision to donate her husband’s organs—and she wanted Jim to receive John’s liver.

Shortly thereafter, Jim’s transplant team in Philadelphia flew to Pittsburg overnight to bring the liver back.  After an incredibly unique chain of events and a brave family’s decision, Jim’s life-saving liver transplant surgery was successfully completed.

His story became a hospital favorite across different departments and floors. He stayed in the hospital for almost 12 days and then joined his wife Kim at the Howie’s House for the first month of his recovery. He attributes his strength during recovery to his faith and the Howie’s House’s warm, friendly environment. “Everybody’s so supportive [at the Howie’s House],” Jim says. “This is our house, and our family, too.”

“You never know the importance of how something we take for granted can change a life forever,” Kim reflects. “If you have a life, you can save a life. You never want to lose a loved one, and if there’s someone you can help, you should be willing to help someone else keep a loved one.”

Our volunteer driver John Branton helps a guest out of the large shuttle we rented for a short time.

Did you know last year our shuttle volunteers made more than 1,600 trips and drove over 19,000 miles to get our guests to doctors’ appointments and hospital visits? That’s about as far as driving from Philadelphia to Los Angeles seven times!

John Branton has been a Howie’s House volunteer driver for five years and a volunteer speaker for Gift of Life Donor Program since he received a liver transplant 10 years ago. He drives two days a week, taking the afternoon shift when guests are usually returning to the Howie’s House.

Now retired, John was a small business owner and insurance executive. He says that he often shares with guests how the transplant enabled him to return to a normal life.

“The conversations that go on in the shuttle are oftentimes very emotional,” says John. “Not everyone winds up with a good outcome. So those kinds of conversations are tough. But even when it’s disappointing news it’s better to share it with other people who can empathize and understand what you’re going through.”

John also notices the difficulties some of our guests face when utilizing our shuttle. Because of its small size, it’s tough to fit everyone’s necessary equipment and even to accommodate all of our guests who’d like to use the service.

“Some transplant patients must travel with multiple oxygen tanks. It’s difficult for their family caregivers to carry these items with them, but also sometimes impossible for them to maneuver their way into the minivan,” explains John.

Watch more of John’s testimonial here.

John sees our need for a larger, more accessible vehicle, and he hopes you do, too. We urgently need your help to comfortably transport our guests to and from area hospitals. Through your kindness today, we can make this a reality.

Will you please help us?

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Banner hanging in the dining room.
The encouraging notes we collected were sewn into a banner which now hangs in our dining room.

Do you remember when we asked you to write an encouraging note to our transplant families as a part of our Welcome Them Home campaign?

Last fall, we set out to collect 1,000 encouraging messages from caring people like you to transplant patients and their families.

We had these notes sewn together into a beautiful welcome banner that is now hanging in our dining room to welcome our transplant families home after long, hard days at the hospital.

It is our hope that these words of encouragement, wisdom, and strength will bring hope to our guests during a difficult journey and that support from our community will bring them joy and peace.

Some of the notes read:

“Welcome to warm hospitality, a comfy bed, warm meals, and a listening ear.” –Lorraine

Handwritten messages from our community.
Handwritten messages from our community.

 

“You are strong and courageous.” –Anonymous

“Stay strong. The people who work here and the other families will be your greatest support.” –Anita

“This is your home to find comfort in and share with those who understand.” –Rob

“There is hope and love, much of it found right here. Ne strong, never give up!” –Tibor

“Difficult roads often lead to beautiful destinations here at the Howie’s House. Welcome.” –Ed

“You’re patient and loving.” –Anonymous

“Hang in there. Things will get better. Never lose hope.” –Mary Ellen

Thanks to you, we can remind our transplant families of the support they have. No one’s transplant journey will be exactly the same, but finding ways to support one another is a crucial part of helping our families feel comfortable, safe, and supported.

Thank you for being part of such an inspiring project!

 

 

Karen and Mark Weidner sitting in the living room.
Karen, left, and her husband Mark, right, sitting in the Howie’s House’s living room.

Last Christmas was difficult for the Weidner family. A fake Christmas tree sat in their living room undecorated. One wreath hung on their front door. The family couldn’t light a fire they could gather around because they feared Karen would start coughing again. “I didn’t even know if I could get up to celebrate Christmas,” Karen says as she sits with me in the living room at the Howie’s House.

Karen Weidner was waiting for “the call” that the precious gift of a new set of lungs was available for her. On a plane trip to Italy, Karen developed a cough that never went away. After a biopsy and bronchoscopy, she was diagnosed with hypersensitivity pneumonitis—inflammation of the lungs caused by an allergen. Karen’s doctors could not identify specifically what was triggering this cough, so she and her husband Mark purchased air filter cleaners to clean their environment as much as possible. One of their biggest fears was having to get rid of their dogs.

“My spirits have been nothing but high here. We’re seeing doctors three times a week. I don’t know what we would’ve down without Howie’s House.” — Karen Weidner

Most days, Karen spent time between her bed and the couch because that was all she could do. “I would pick up the phone, say 2 sentences, and start coughing,” she recalls. Karen would panic when she’d have to go upstairs to bed each night. Mark had to place a chair at the top of the steps so she could sit down and catch her breath after climbing them. “I was miserable knowing I had to do this every night,” she says. When she made it up the stairs, it would take her an hour to put on her pajamas, brush her teeth, and wash her face.

Karen wears a mask to protect herself during her transplant journey.
Karen wears a mask to protect herself during her transplant journey.

Karen also lost a significant amount of weight, so doctors gave her a feeding tube. That’s when her friends could tell something was really wrong. Her doctors couldn’t come up with a solution for her—medication or a special diet did not seem to be helping. Finally, they placed her on the transplant list and suggested she go to a transplant center hospital in Philadelphia.

When she arrived in Philadelphia, Karen was immediately admitted and given a second evaluation where she was found to be sick enough to need a transplant and well enough to withstand the surgery. She spent about five days in the hospital until she was cleared to continue waiting at her home in northern New Jersey.

The Ultimate Christmas Gift

On Christmas Day, Karen received her call at 3:00 in the morning. Her doctors said a generous donor had selflessly donated a set of lungs they called a perfect fit. The Weidners made it to Philadelphia by 6:30 that morning. “I didn’t see another set of headlights for 25 miles,” Mark says. When they arrived, 30 nurses were waiting behind the counter. “I thought they were throwing a party for me,” Karen says.

Karen during her transplant journey.
Karen during her transplant journey.

Karen’s surgery was successful. She stayed in the hospital for 17 days post-operation and then came to the Howie’s House with Mark after they were referred by their hospital’s social worker. Karen claims the Howie’s House is one of the reasons she’s made it through her recovery.

“My spirits have been nothing but high here. We’re seeing doctors three times a week. I don’t know what we would’ve down without this place,” Karen says.

“It’s a sanctuary. The services make life easier for you.” Mark says.

Karen, left, and the young girl from her church who wrote her letters during her recovery.
Karen, left, and the young girl from her church who wrote her letters during her recovery.

When asked about the future, Karen says: “I have a lot of goals—I want to see my kids more, take one last shot at my business. I want to walk my last daughter down the aisle.”

Both Karen and Mark agree talking with other guests going through similar experiences has helped them get through this difficult process. “I want to be everyone’s cheerleader here,” Karen says.

Many people in the Weidner’s community have heard about their struggle. One young girl from their church asked Santa to bring Karen lungs. She also wrote Karen a letter wishing her a successful recovery.

“We’ve been blessed unbelievably,” she says.

 

 

“My experience at Gift of Life Howie’s House is inexpressible.

I spent 42 nights there while my husband was in the hospital. The Gift of Life Howie’s House is a home. When visiting my husband daily at the hospital, I would find myself telling him what time I would be going “home” that day.

When I did arrive home, I was always greeted by the smiling faces of the dedicated staff and the aromas of a home cooked meal. The rides to and from the House were another gift. The volunteers, many of them transplant recipients, were a source of support because they knew exactly what I was experiencing. Of course, there was also a tremendous connection that developed among the guests.

Although everyone had a different story, and we were all on different steps of the journey, it was such a comfort to share my day with people who were walking the same walk as I was.”

–Judy, past family House Guest

All Aboard Our Campaign for a New Shuttle

More than half of our guests depend on our free, regularly scheduled shuttle service to travel back and forth from the Howie’s House to area transplant centers. This past year, more than 4,600 guests climbed aboard our six-passenger minivan driven by our devoted volunteer drivers. But on too many of those trips, guests were turned away because it was full.

The minivan also has limited cargo space for stowing oxygen tanks and wheelchairs needed by transplant patients. And squeezing into the back row of seats can be challenging or impossible for some of our guests.

With your help, we can make it easier for our guests to get to area transplant centers and #HelpShuttleHope

To meet the increased need for shuttle service as our occupancy grows, and to better provide for our guests’ comfort and wellbeing, the Howie’s House must purchase a new 11-passenger vehicle. Getting on and off will be made easier and faster by its bus-style folding door, low steps, a center aisle, and raised roof. Its larger capacity will enable us to adjust the schedule so drivers have more time to complete their runs and stay on time. It will also have a larger cargo area.

Our new shuttle will cost more than $50,000, not including gas, maintenance, and insurance. We are asking everyone in our Howie’s House community to please consider helping us make this a reality.

By supporting the purchase of the new passenger van, you will help to ensure that our shuttle service continues to meet the needs of Howie’s House guests. Transportation is an important part of the comprehensive services provided within our modest $40 nightly lodging fee. Charitable contributions to the Howie’s House make this possible.

Less stress and cost for guests

In addition to comfort and convenience, the shuttle helps transplant families save on the cost of parking and gas, which can add up to hundreds of dollars a month, and relieves them of the burden of city driving.

“Most of our guests aren’t familiar with Philadelphia and so they have no idea how to get to the transplant centers. They get overwhelmed by the traffic. And they’re already overwhelmed by their own situation. We’re trying to make it easier for them by providing these door to door transportation services,” says Joe Kauffman, Howie’s House Operations Manager.

No one could agree more than Diane Hems who stayed at the Howie’s House while her husband, Don, was waiting for his gift of life, a lung transplant. “Having the shuttle service available alleviated my stress and fears of getting lost in the city. Each day, the volunteer driver safely dropped me off at the hospital and then brought me back to the Howie’s House at the end of the day. There are no words to describe how grateful we are for the services provided.”

Claudia Fernandez often took the shuttle when her young son, Josh, was undergoing a lung transplant. “I liked it because I didn’t have to deal with traffic. It’s not easy driving around Philly when you’re not from there. I found it so convenient and helpful.”

Every ride a healing journey

The backbone of the Howie’s House shuttle service is our devoted volunteer drivers who last year made more than 1,500 trips and drove over 19,000 miles, expertly navigating city traffic and getting our guests to doctors’ appointments and hospital visits.

There are a dozen volunteer drivers who either work regular part-time shifts or who fill in when needed. Most of them are transplant recipients or have been family caregivers. They enjoy interacting with our guests and helping them through experiences they have in common.

John Branton has been a Howie’s House volunteer driver for five years and a volunteer speaker for Gift of Life Donor Program since he received a liver transplant 10 years ago. He drives two days a week, taking the afternoon shift when guests are usually returning to the Howie’s House.

Now retired, John was a small business owner and insurance executive. He says that he often shares with guests how the transplant enabled him to return to a normal life.

“The conversations that go on in the shuttle are oftentimes very emotional,” says John. “Not everyone winds up with a good outcome. So those kinds of conversations are tough. But even when it’s disappointing news, it’s better to share it with other people who can empathize and understand what you’re going through.”

Riding the shuttle also enables families the time to share their experiences with one another, gaining support and strength along the way.

Ashley Adams, who rode the shuttle when her husband Bobby was gravely ill and waiting for a lung transplant, found it comforting to talk with other families and the volunteer drivers. “It was really great being able to talk with everybody about what they’re going through. It does really help,” she says. “One of the drivers had a lung transplant so I was asking him a lot of questions about it. Bobby and I ended up getting married in the hospital and it was this shuttle driver who arranged for a friend of his to marry us.”

Please consider making a tax-deductible contribution today to support the urgent need to purchase a new passenger van and #HelpShuttleHope.

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