When Tim Adams was diagnosed with idiopathic pulmonary fibrosis, his pulmonologist told him he only had one year left to live.
However, three years and a new lung later, Tim is doing very well.
Tim came to seek life-saving transplant treatment at Temple University Hospital in Philadelphia. His wife, Donnamarie, stayed at the Gift of Life Howie’s House for two months during his treatment and visited him every day.
“Having my wife nearby was especially helpful to my recovery,” Tim says. “Having a place for your family to stay while having major, life-saving surgery is an incredible blessing.”
Tim and Donnamarie are from southern New Jersey. If it wasn’t for the House, they would’ve had to rent an apartment—a huge financial strain.
Tim was able to join Donnamarie at the House after he received his precious gift of life from a selfless donor. Having an affordable place to stay in Philadelphia was a huge help as he went back and forth from the hospital for rehab visits. He and Donnamarie still travel to Philadelphia for Tim’s follow-up appointments.
“The Gift of Life Howie’s House, the staff, and its offerings helped us so much,” Tim says. “We’ve met and befriended other lung transplant patients from around the country. We keep up with each other.”
At the House, it’s easy for guests, whether they’re a patient or caregiver, to connect with each other. Sharing stories and words of wisdom with people on the same journey, and with those who’ve had similar experiences, can relieve their worries and stress.
Tim calls his post-op time at the Gift of Life Howie’s House his “reintegration to society.” He explains: “I was able to settle down from ‘pure’ hospital life and be around other people whom I once avoided to prevent getting sick because of my suppressed auto-immune system. At the House, other people understand post-op patients. You can come back into the world and still have your safe space.”
Now, one year post-transplant, Tim tells everyone he can about the Gift of Life Howie’s House and how it has helped him. He also joined the Board of Directors of the 2nd Wind Lung Transplant Association dedicated to supporting lung transplant patients.
“I tell everybody I know about the House. If I could, I’d run an ad in the NY Times. Everyone should know about Gift of Life Howie’s House.”
Each year, members of Gift of Life Howie’s House community hold Facebook fundraisers to raise money for our mission of being a “home away from home” for transplant families. Some people give up their birthdays and ask their Facebook friends to donate to our cause in lieu of gifts, and others fundraise in honor or memory of a loved one. Whatever the reason, we are extremely grateful for each and every one!
Hosting a Facebook fundraiser is an easy, fun, quick way to support our mission. It’s also a great way to get your friends involved and share your story to your community.
Signing up is easy! Simply click the link below, set your goal, share your story, and press “create” to share with your friends and family!
Join the many others who have already supported us and set up your Facebook fundraiser today!
The annual Gift of Life Volunteer Recognition Ceremony, a day where we recognize the compassion, dedication, and hard work our volunteers bring to the Gift of Life community, took place on June 9th.
The Howie’s House had the opportunity to present four awards—the Home Cook Heroes Award, the Heartman Award, the Fundraising Ambassador Award, and the Guest Services Award. We are so incredibly proud and humbled by all of our volunteers and couldn’t have been happier to honor them in this special way.
We presented our Home Cook Heroes Award to New Vision Pioneers, who, led by Jody, have been volunteering with us since the spring of 2015. Since then, they have come in 36 times to date and have served nearly 2,000 meals to families who came a long way to receive treatment in Philadelphia.
The Heartman Award was given to Janice Schwartz Donahue. Janice has been volunteering with Gift of Life for over 20 years, first getting involved with her daughter, Jessica, who was a heart transplant recipient. Sadly, Jessica passed away, but Janice continues to carry on her legacy by coordinating Jessie’s Day with her other daughter, Laura, every year to give the gift of education to organ transplant recipients who are looking to attend college.
Janice is also a weekly volunteer at the Howie’s House. Every Wednesday, you’ll find her in the kitchen warmly welcoming and supporting the Home Cook Heroes volunteer groups, giving tours, setting up and cleaning up, or doing whatever is needed to make sure the kitchen operations are running smoothly.
She has become part of the Howie’s House “family” and we just love having her with us each week. To date, Janice has contributed over 900 hours of her time to supporting the Howie’s House!
This year, the 2018 Fundraising Ambassador Award, which recognizes a volunteer, group, or organization that has demonstrated exceptional leadership in coordinating, motivating, and successfully completing fundraising efforts for Gift of Life Howie’s House, was given to the Penkala Family.
In an effort to honor his son Paulie and raise awareness about organ and tissue donation, Paul Penkala, along with family and friends, hosts an annual golf tournament and graciously donates all of the money raised to Gift of Life Howie’s House.
In 2011, the family pledged $25,000 to underwrite the Howie’s House resident laundry room in their son’s name, because, as Paul put it, “Paulie was always particular about ironing his clothing.”
Even though they fulfilled this pledge a few years ago, the Penkalas continue to host their outing to support our Adopt-A-Family Program.
The Penkalas also volunteer in the House as Home Cook Heroes, preparing and serving home-cooked meals to our guests, and in the community by participating in speaking engagements, sharing their donation story, and spreading awareness for organ and tissue donation.
The Penkala family has accomplished so much and we are so grateful for all you’ve done for the Howie’s House, our transplant families, and the transplant community.
Lastly, our Guest Service Award was given to Ginneh Earle. Ginneh began volunteering at the Howie’s House in 2014 and has generously contributed over 400 hours of her time since joining our team.
Anyone who has been at the Howie’s House on a night where Ginneh is helping knows that they are instantly in good hands, as she makes sure that our Home Cook Heroes groups have everything they need, and always doing so with a welcoming smile. She often will stay at the Howie’s House until after 9pm, making sure several times that there is really nothing else she can do to help!
In addition to being a friendly presence at the Howie’s House on a weekly basis, Ginneh also has volunteered at the Dash and President’s Reception.
Ginneh does not have a direct connection to transplantation, but says that she just wants to help, and we can’t thank her enough for that. Her leadership, kindness, and commitment to support and comfort transplant patients, families, caregivers, and fellow volunteers is truly admirable.
Our volunteers play such an important role at the Howie’s House and we are so grateful for their help—thank you so much!
One June morning, Joseph Mansaray woke up and found it difficult to breathe. His father, Peter, took him to the hospital where a chest x-ray revealed he had an enlarged heart. His doctor explained to him that the small, local hospital would not be able to help and had Joseph and his father transferred in an ambulance to another where he was admitted and spent 12 days in the ICU.
After several more tests, doctors there also felt there was nothing they could do to help Joseph. He and his father were transferred again, this time by helicopter, to a world renowned hospital in Philadelphia. Here, doctors were able to diagnose Joseph with cardiomyopathy, a disease of the heart muscle which makes it difficult for the organ to pump blood, and told him that he may need a transplant. Joseph’s mother, Mary, was also recently diagnosed with cardiomyopathy and was just beginning her transplant journey.
Doctors gave Joseph a left ventricular assist device, or an L-VAD, to help pump blood throughout his body, hoping it would strengthen his heart enough to later be removed. After surgery, Joseph was discharged to the Howie’s House where he and his father stayed during his recovery. His mother remained at home with his other siblings. A few weeks later, after three months in three different hospitals, Joseph and his father were able to join them. Life, however, wasn’t the same—Joseph couldn’t go to school, run, or play soccer.
That fall, Joseph returned to Philadelphia for a follow-up appointment where doctors found the L-VAD had not worked like they had hoped. Joseph’s heart was not healing and the next course of treatment was a heart transplant. Around this time, Mary had received her precious gift of life, but unfortunately, suffered major complications. She passed away in November 2015.
“Watching my mom’s transplant and what happened to her after was so hard for me. I was so sad that my mom had passed and also so scared that this was going to happen to me,” Joseph says.
Thankfully, his dad was there to support him.
“[Joseph] never complained. And as a dad and a caregiver, watching my son go through what he went through and handle it with such grace. It helped me. It really helped me,” Peter says.
In February 2016, Joseph received “the call” and was gifted a new heart thanks to a charitable act by a selfless donor. His recovery went smoothly, and 10 days after his surgery, he was discharged to the Howie’s House with his father once more.
“The House made life easier for me and my family during this time and I am very grateful for that,” Joseph says.
After a few more weeks, Joseph was able to return home. He was able to play soccer during his senior year of high school. Now he also plays in college.
“I thank everyone at the Howie’s House for all the good work they do every day and all that they have done for my family,” Joseph says. “They helped us through some of the hardest times in our lives, giving us somewhere to sleep, connecting us to other transplant families and donor families, and helping us when life was falling apart.”
“When the helicopter landed at the hospital in Philadelphia, I was alone with my son,” Peter explains. “I was afraid, worried, confused…but by the time we left [the Howie’s House], I left with a whole family.”
Peter is just one of the many strong husbands and fathers who stay at the Howie’s House. This Father’s Day, you can give them one less thing to worry about so they can focus on supporting their families and each other through such difficult times. Please consider making a gift to help support the fathers and sons like Peter and Joseph undergoing the transplant journey, or in honor of an important male figure in your life.
Click here to give!
David and Elizabeth are leaving a legacy.
Gift of Life Howie’s House is proud to spotlight members of the Legacy Society who have made planned gifts to support the future of the Howie’s House.
Twenty-five years ago, David and Elizabeth Kennedy lost their eldest son, David Jr., in a car accident. The couple made the brave decision to donate his tissue–one that helped 45 other people.
Shortly after her son’s passing, Elizabeth joined the Lehigh Valley Ambassadors for Organ and Tissue Donation to help spread awareness about organ and tissue donation. She also became involved with Gift of Life, and she and her husband began to attend volunteer meetings. They’ve also attended the Transplant Games since 2004.
When Howie’s House opened in 2011, David and Elizabeth began to financially support our mission, too, by becoming Family Circle members. They attended our President’s Reception, an event to honor our Family & Founder’s Circle members, and became interested in Gift of Life Howie’s House’s Legacy Society for Planned Giving. Both were thinking about redoing their wills and generously decided to include the Howie’s House in them.
“The Howie’s House gives patients one less thing to worry about,” David says. “What the staff does is absolutely amazing. It’s a great feeling to support it. We’re able to be a part of the Legacy Society, so why wouldn’t we?”
The Kennedys’ decision to join our Legacy Society and make a planned gift ensures that they will help families staying with us years from now, and that their values will live on in the future at the Howie’s House.
“We were thinking about what could be possible for the families who will stay at the house,” Elizabeth says. “We knew they’d need a place to go. We knew what we went through as a donor family and we can only imagine how difficult it must be for those on the waiting list. We understand how important it is for them to have their families close by.”
Are you also considering drafting or redoing your will? You, too, can join Gift of Life Howie’s House’s Legacy Society for Planned Giving and ensure that the love and care transplant families need will be provided for years to come.
Have you already included Howie’s House in your will?
Let us know so we can celebrate with you now! Enjoy recognition today as a Legacy Society member. Supporters who notify us that they have made arrangements for planned gifts will be recognized as members of our prestigious Legacy Society. Member who have made bequests of $10,000 or more will have their names added to the special Legacy Society Wall in the House’s living room.
Find more information here.
To discuss making a planned gift to Gift of Life Howie’s House or if you have already named us in your will, please contact Sara Cohen, Development Manager at 267-546-9812 or email scohen@giftoflifefamilyhouse.org. Please consult your attorney, tax adviser, or financial adviser before making a bequest or updating your estate plan.
In August of 2014, Carol McCloud’s son, Ryan, became an organ donor. At 20 years old, Ryan saved four lives. Until her son’s passing, Carol and her family didn’t know much about donation, but she says it’s been a blessing to her and her family, helping them get through her son’s sudden passing.
The McCloud’s are residents of Fishtown, a neighborhood just north of Gift of Life Donor Program and the Howie’s House, so it was easy for Carol to begin volunteering with our organization. She began with the Donor Dash, and soon after, she visited the Gift of Life website to learn about other volunteer opportunities. Carol also noticed signs on the highway for the Howie’s House.
After some thought, she and her family decided that on the first anniversary of her son’s passing, they’d do a food drive for the Howie’s House. They’ve been doing one ever since.
The McCloud family fills up their entire minivan with food and other household supplies for guests here at the Howie’s House. Family, friends, and small businesses in the neighborhood like grocery stores and restaurants all contribute; relatives and friends also advertise at work. “A big chain of people have made this drive so successful,” Carol says.
The before and after care transplant patients and their families receive at the Howie’s House motivates Carol to keep giving. “Being able to help others the way people helped my son is important to me,” she says. “Volunteering and spending time at the Howie’s House allows me to see first-hand what they do for families and allows me to celebrate my son and spread his story.”
Carol and her family also volunteer as Home Cook Heroes on or around Ryan’s birthday.
Thank you, McCloud family, for selflessly supporting our mission and transplant families!
The ladies of Rutgers Gang have kept their college friendships especially strong. They began volunteering as Home Cook Heroes when the Howie’s House opened in 2011, and have continued their commitment to serving transplant families in honor of a member whose relative passed after while waiting for a multi-organ transplant and another whose daughter received two kidney transplants.
At least once a month, these women come together not only to catch up, but to prepare and serve a warm meal for our guests. “Some people don’t realize the stress on caretakers is very hard,” Barbara, one of the members, says. “It’s good to sit down, relax, and enjoy something other than a boxed meal.”
For one of their first meals, they prepared a big lasagna dinner. However, when they found out most other Home Cook Heroes groups were serving Italian-style meals, they started to change things up. Since then, they’ve served breakfast for dinner, Mexican meals, and have even barbequed outside.
“We’ve got our routine down to a science,” Barbara says.
After they finish cooking, the ladies will often go out to dinner themselves, bringing their husbands and boyfriends along with them.
“It’s fun to get together with my friends,” Barbara says. “It’s also fun to do something for others. We all love cooking and it’s something we can all do. The Howie’s House is so life-changing. It feels like home.”
We’re so grateful these women have found a home here at the Howie’s House and that by volunteering with us, they’re honoring important people in their lives.
We’ll see you next time, Rutgers Gang!
Gift of Life Howie’s House would like to welcome the newest member of the Gift of Life Howie’s House Advisory Board, Bill Soloway! Bill is a heart transplant recipient, receiving his precious gift of life in June of 2015 thanks to a selfless donor. He is well known for his community advocacy, his relationship building, and his endless energy. “You have one life to live and eight lives to give,” he says. “Become an organ donor. My life depended on it.”
In the mid-1990s, Bill was diagnosed with hypertrophic cardiomyopathy, an inherited condition where heart muscle cells become enlarged, altering the structure and function of the heart. Bill lost his 27-year old brother to the same condition.
Before his transplant journey, Bill loved cycling. During his post-transplant recovery, Bill was inspired by stories he heard about the Transplant Games, a multi-sport event for individuals who have undergone life-saving transplant surgeries. Just 10 weeks after his transplant, Bill got back on his bike. This year, Bill will compete in both the Transplant Games’ 5K and 20K bicycle races, as well as in badminton, volleyball, and pickleball.
Bill honors his donor and donor family through his work in the community including service as a Gift of Life Ambassador, HUP Heart Transplant Support Group member, Team Philadelphia member, TRIO Philadelphia Chapter Board member, UNOS Ambassador, Masonic Blood+Organ Donor Board member, and a Help Hope Live committee member. Bill is also an Eagle Scout.
When asked about the Howie’s House, Bill says: “Being a heart transplant recipient, I understand the many trials and tribulations that families go through in the transplant process. To have a place that is a safe port for transplant families to anchor in after a long day at the hospital means an awful lot, especially to those families that are not familiar with the Philadelphia area. I believe in everything the Gift of Life Howie’s House stands for and am honored to be a part of such an amazing organization.”
Ed Galarza’s been a volunteer with Gift of Life Donor Program since he received a life-saving liver transplant in 2003. As soon as the Howie’s House opened in 2011, he started volunteering here, too. He started out cooking dinners for our guests, checking them in at the Front Desk, and driving them to and from transplant hospitals for their doctor’s appointments. Seven years later, Ed’s still hanging out with us. He volunteers twice a week assisting with upkeep around the facility, performing maintenance work, and is a back-up shuttle driver.
Ed was born in Puerto Rico, grew up in the Bronx, and now lives in New Jersey. He has 2 children, 3 grandchildren, and is a retired Army veteran. He was first diagnosed with liver disease in 1999, but didn’t start to get sick until 2003. Unfortunately, there was no Howie’s House for him or his family to stay in during his transplant journey. His wife had to travel to and from the hospital by herself. He understands the importance of having a safe place to stay during such a difficult journey.
“The Howie’s House is very important,” he says. “It’s all about helping people in need.”
Ed is motivated to give back to everyone who has helped him along his own transplant journey. “I volunteer here to give back to the wonderful people who work for this organization, for my second chance at life, and for those who worked their butts off to help me get where I am today,” he says. “I get more than I give when I’m here. Being in the Howie’s House makes me feel better.”
Ed also enjoys giving back to others who are on their own transplant journeys. “I really like talking with the guests I meet. I can relate to them,” he says. “I’ve been there. I know what they’re going through and what they will go through.”
We’re so thankful for you, Ed. You help make the Howie’s House such a wonderful place!
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